SCIE research briefing 3: Aiding communication with people with dementia
References
Click here for a full alphabetical list of the references.
(1) Powell J.A. (2000) Communication interventions in dementia. Reviews in Clinical Gerontology 10 (2): 161-168.
Traditional review considering a range of recent claims concerning the validity of a wide range f communication interventions currently employed in dementia care.
(2) Richter J.M. Roberto K.A. Bottenberg D.J. (1995) Communicating With Persons With Alzheimer's Disease: Experiences of Family and Formal Caregivers. Archives of Psychiatric Nursing9(5): 279-285.
Exploratory study comprising focus group interviews with two groups of caregivers of persons with Alzheimer's Disease (formal and family).
(3) Joseph Rowntree Foundation (2001) Exploring ways for staff to consult people with dementia about services. Findings May 2001 - Ref 541.
Research study involving 31 people with dementia.
(4) Goldsmith M. (1996) Hearing the voice of people with dementia: opportunities and obstacles. London. Jessica Kingsley. Abstract available.
Book based on interviews with people with dementia and professionals working in the field, extensive literature search and a consultative document.
(5)Bamford C, Bruce E. (2000) Defining the outcomes of community care: the perspectives of older people with dementia and their families. Ageing and Society2: 543-570.
Research based on a small consultation with people with dementia and their carers.
(6) Barnett E. (2000) Including the person with dementia in designing and delivering care: "I need to be me!' London. Jessica Kingsley. Abstract available.
Book looking at the roles of those who decide on who, what, where and when care is given, as well as those who deliver care.
(7) Proctor G. (2001) Listening to older women with dementia: relationships, voices and power. Disability and Society16(3): 361-376.
Interview study of 4 older women with dementia.
(8) Clark L.W. (1995) Interventions for persons with Alzheimer's disease: Strategies for maintaining and enhancing communicative success. Topics in Language Disorders15(2): 47-65.
Discussion paper examining different interventions for people with Alzheimer's disease.
(9) Sabat S.R. Cagigas X.E. (1997) Extralinguistic communication compensates for the loss of verbal fluency: a case study of Alzheimer's disease. Language and Communication17(4): 341-351.
Case study of a form of communication used by an AD sufferer whose verbal fluency was highly comprised due to sever word-finding problems.
(10) Woods B. (1994) Management of memory impairment in older people with dementia. International Review of Psychiatry6: 153-161.
Traditional review of the management of memory impairment in older people with dementia.
(11) Zimmerman P.G. (1998) Effective communication with patients with dementia. Journal of Emergency Nursing 24(5): 412-415.
Commentary on effective communication with patients with dementia by nurses.
(12) Dijkstra K. Bourgeois M. Burgio L. Allen R. (2002) Effects of a Communication Intervention on the Discourse of Nursing Home Residents with Dementia and Their Nursing Assistants. Journal of Medical Speech-Language Pathology10(2): 143-157. Abstract available.
Evaluation of an intervention programme that included the use of effective communication techniques and memory books by nursing assistants in nursing homes.
(13) Greer K.L. Pustay K.A. Zaun T.C. Coppens P. (2001) A Comparison of the Effects of Toys versus Live Animals on the Communication of Patients with Dementia of the Alzheimer's Type. Clinical Gerontologist24(3/4): 157-182.
Six female nursing home residents with moderate dementia were randomly assigned into two groups and measurements were recorded in three conditions: without stimuli, in the presence of two toy cats, and in the presence of two live cats.
(14) Orange J.B. Colton-Hudson A. (1998) Enhancing Communication in Dementia of the Alzheimer's Type. Topics in Geriatric Rehabilitation14(2): 56-75.
Overview of current communication education and training programmes for caregivers of individuals with dementia of the Alzheimer's type, followed by case study involving a spousal caregiver of an individual with dementia of the Alzheimer's type.
(15) Small J.A. Gutman G. (2002) Recommended and Reported Use of Communication Strategies in Alzheimer Caregiving. Alzheimer Disease and Associated Disorders16(4) 270-278. Abstract available.
Traditional literature review and survey of 20 family (spouse) caregivers of persons diagnosed with Alzheimer's disease.
(16) Friedman R. Tappen R.M. (1991) The Effect of Planned Walking on Communication in Alzheimer's Disease. Journal of the American Geriatrics Society39: 650-654.
Randomized, non-blinded two-group experimental study of 30 patients with Alzheimer's disease.
(17) Brotons M. Koger S.M. (2000) The Impact of Music Therapy on Language Functioning in Dementia. Journal of Music Therapy37(3): 183-195.
Research study, using a within-subjects design, exploring the effects of music therapy versus conversational sessions on language functioning in 20 dementia patients.
(18) Department of Health (2001) National Service Framework for Older People. Standard Seven: Mental health in older people (pp 90-106).
Department of Health policy/ guidance document.
(19) Alzheimer's Society.
Alzheimer' Society Web site providing prevalence and incidence figures for dementia.
(20) Killick J. Allen K. (2001) Communication and the care of people with dementia. Buckingham. Open University Press.
Book covering both the theory and practice of communicating and caring for people with dementia.
(21) Touzinsky L. (1998) Validation Therapy: Restoring communication between persons with Alzheimer's disease and their families. American Journal of Alzheimer's Disease13(2): 96-101. Abstract available.
Overview of validation therapy and case study employing the use of validation therapy between a man with Alzheimer's Disease and his daughter.
(22) Santo Pietro M.J. Boczko F. (1998) The Breakfast Club: Results of a study examining the effectiveness of a multi-modality group communication treatment. American Journal of Alzheimer's Disease 13(3): 146-158. Abstract available at:
Controlled research study evaluating a five-day-a-week programme of structured multi-modality group communication ("The Breakfast Club").
(23) Bourgeois M.S. Dijkstra K. Burgio L. Allen-Burge R. (2001) Memory Aids as an Augmentative and Alternative Communication Strategy for Nursing Home Residents with Dementia. Augmentative and Alternative Communication17: 196-210.
Controlled research study evaluating memory aids as an augmentative and alternative communication strategy for nursing home residents with dementia (N=66).
(24) Moss S.E. Polignano E. White C.L. Minichello M.D. Sunderland T. (2002) Reminiscence Group Activities and Discourse Interaction in Alzheimer's Disease. Journal of Gerontological Nursing 28(8): 36-44.
Pilot research study of the effects of reminiscence group activities on 15 people with Alzheimer's disease.
(25) Runci S. Doyle C. Redman J. (1999) An Empirical Test of Language-Relevant Interventions for Dementia. International Psychogeriatrics11(3): 301-311.
Case study employing a randomized, alternating-treatments design to determine the effectiveness of an Italian-language intervention.
(26) Hopper T. Bayles K.A. Tomoeda C.K. (1998) Using Toys to Stimulate Communicative Function in Individuals with Alzheimer's Disease. Journal of Medical Speech-Language Pathology 6(2): 73-80.
Single-subject experimental design with replications across subjects.
(27) Nolan M. Lundh U. Grant G. Keady J. eds (2003) Partnerships in Family Care: understanding the care giving career. Buckingham. Open University Press.
A book which considers how family and professional carers can work together more effectively.
(28) Parker J. (2003) Positive Communication with people who have dementia. In: Adams T. Manthorpe J. (2003) Dementia Care. London. Hawkers Publications Ltd.
(29) Altus D.E. Engelman K.K. Mathews R.M. (2002) Using Family-Style Meals to Increase Participation and Communication in Persons with Dementia. Journal of Gerontological Nursing 28(9): 47-53.
Research study (ABAB reversal design) examining the effect of changing the mode of meal delivery to "family-style" on communication in persons with dementia in the US.
(30) Tabak N. Bergman R. Alpert R. (1996) The mirror as a therapeutic tool for patients with dementia. International Journal of Nursing Practice2(3): 155-159.
Survey of 100 patients suffering from dementia aged 67-85 years.
(31) Brown S. Gotell E. Ekman S.-L. (2001) Singing as a therapeutic intervention in dementia care. Journal of Dementia Care9(4): 33-37.
Small-scale research study of 9 people with dementia to evaluate the effect of caregiver-mediated singing on verbal communication between people with dementia and caregivers during the daily morning routine.
(32) Coaten R. (2001) Exploring reminiscence through dance and movement. Journal of Dementia Care 9(5): 19-22.
Paper outlining the author's personal experiences as a practitioner and care staff trainer in Scotland of exploring reminiscence through dance and movement.
(33) Ripich D.N. Ziol E. Lee M.M. (1998) Longitudinal Effects of Communication Training on Caregivers of Persons with Alzheimer's Disease. Clinical Gerontologist19(2): 37-53.
Controlled research study evaluating a training programme designed to improve caregivers communication skills with their family members (Intervention N=19).
(34) Done D.J. Thomas J.A. (2001) Training in communication skills for informal carers of people suffering from dementia: a cluster randomised clinical trial comparing a therapist led workshop and a booklet. International Journal of Geriatric Psychiatry16 (8): 816-821. Abstract available.
Evaluation of a short training workshop in communication techniques (N=30) versus an information booklet (N=15) for carers of people with dementia.
(35) McCallion P. Toseland R.W. Lacey D. Banks S. (1999) Educating Nursing Assistants to Communicate More Effectively With Nursing Home Residents With Dementia. The Gerontologist 39(5): 546-558. Abstract available.
Research study (2 intervention conditions x 2 skilled nursing homes x 4 assessments partial crossover control design) describing the development and evaluation of a Nursing Assistant Communication Skills Programme (NACSP).
(36) Burgio L.D. Allen-Burge R. Roth D.L. Bourgeois M.S. Dijkstra K. Gerstle J. Jackson E. Bankester L. (2001) Come Talk With Me: Improving Communication Between Nursing Assistants and Nursing Home Residents During Care Routines. The Gerontologist41(4): 449-460. Abstract available.
Research study evaluating communication skills training and the use of memory books by certified nursing assistants on verbal interactions between nursing assistants (N=64) and nursing home residents (N=67).
(37) Cott C.A. Dawson P. Sidani S. Wells D. (2002) The Effects of a Walking/Talking Program on Communication, Ambulation and Functional Status in Residents with Alzheimer Disease. Alzheimer Disease and Associated Disorders16(2): 81-87. Abstract available.
Randomized controlled trial of 86 people with Alzheimer disease in three geriatric long-term care facilities n Canada.
(38) Tappen R.M. Williams-Burgess C. Edelstein J. Touhy T. Fishman S. (1997) Communicating With Individuals With Alzheimer's Disease: Examination of Recommended Strategies. Archives of Psychiatric Nursing11(5): 249-256.
Interview study of 30 people with advanced Alzheimer's disease in the US.
(39) Neal M. Briggs M. (2002) Validation therapy for dementia (Cochrane Review). In: The Cochrane Library, Issue 2, 2003. Oxford: Update Software. Abstract available.
Cochrane systematic review.
(40) Spector A. Orrell M. Davies S. Woods R.T. (2002) Reminiscence therapy for dementia (Cochrane Review). In: The Cochrane Library, Issue 2, 2003. Oxford: Update Software. Abstract available.
Cochrane systematic review.
(41) Chung J.C.C. Lai C.K.Y. Chung P.M.B. French H.P. (2002) Snoezelen for dementia (Cochrane Review). In: The Cochrane Library, Issue 4, 2003. Chichester, UK: John Wiley & Sons, Ltd. Abstract available.
Cochrane systematic review.
(42) Jones G.M.M. (1997) A review of Feil's validation method for communicating with and caring for dementia sufferers. Current Opinion in Psychiatry10(4): 326-332.
Overview of Feil's validation method.
(43) Packer T. (1999) Dementia Part 3: communication. Professional Nurse14(10): 727-731.
Commentary on how nurses can communicate more effectively with people with dementia.
(44) Murray L.L. Dickerson S. Lichtenberg C.C. (2003) Effects of toy stimulation on the cognitive, communicative, and emotional functioning of adults in the middle stages of Alzheimer's disease. Journal of Communication Disorders36: 101-127. Abstract available.
Evaluation of the toy stimulation on the language, cognition, and emotional state of patients in the middles stages of Alzheimer's disease (N=18).
(45) Hendryx-Bedalov P.M. (1999) Effects of caregiver communication on the outcomes of requests in spouses with dementia of the Alzheimer type. International Journal of Aging and Human Development 49(2): 127-148.
Case studies of three clinical and three matched non-clinical couples in the US.
(46) Chalmers J.M. (2000) Behavior management and communication strategies for dental professionals when caring for patients with dementia. Special Care in Dentistry20(4): 147-154.
Traditional literature review of behaviour management and communication strategies for dental professionals caring for patients with dementia.
(47) Reid D. Ryan T. Enderby P. (2001) What Does it Mean to Listen to People with Dementia? Disability and Society16(3): 377-392.
Interview study (N=19) of people with dementia in Sheffield.
(48) Alm N., Astell A., Ellis M., Dye R., Gowans G., Campbell J. (2004). A cognitive prosthesis and communication support for people with dementia. Neuropyschological Rehabilitation, 14 (1-2), 117-134.
This article describes a project to assess the effectiveness of a multimedia conversation support system. Abstract available
(49) Alm N., Astell A., Gowans G., Campbell J., Dye R., Ellis M. (2004). Supporting communication in dementia: the potential of hypermedia. Neurobiology of Aging, 25 (S2), S341-S342.
This article describes a project to assess the effectiveness of a multimedia conversation support system.
(50) Walker B., Dale T. (2004). How Fancy Footwork can open up the language of dementia. Journal of Dementia Care, 12 (6), 30-31.
This paper describes a training programme designed to help communication with people with dementia.
