Dementia Gateway: Young onset dementia

Section editor: Ruth Bartlett, Read more about Ruth Bartlett Section reviewer: Agnes Houston, Read more about Agnes Houston

People who develop young onset dementia – that is, dementia diagnosed before a person is 65 years old – face many challenges. Obtaining a diagnosis and accessing age-appropriate services are two big issues, and there are many more. Despite, or perhaps because of, these difficulties younger people have been at the forefront of the growing campaign by people with dementia to change society's attitudes towards dementia.

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I think we're trying to reach out and educate everyone, and to say that dementia is not the end. When you get the diagnosis, it doesn't mean you have to crawl into the corner and die.

Agnes Houston, a woman with dementia (The Guardian, 2008)

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