Dignity in care: References

• Addicott, R. and Ashton, R., eds. (2010). ‘Delivering better care at end of life: The next steps.’ London: The King's Fund.
• Agich, G. J. (2007). ‘Reflections on the function of dignity in the context of caring for old people.’ Journal of Medicine & Philosophy 32(5): 483–94.
• Anderberg, P. et al. (2007). ‘Preserving dignity in caring for older adults: a concept analysis.’ Journal of Advanced Nursing 59(6): 635–643.
• Andersson, M. et al. (2008). ‘Old people receiving municipal care, their experiences of what constitutes a good life in the last phase of life: a qualitative study.’ International Journal of Nursing Studies 45(6): 818–828.
• Baillie, L. (2008). ‘Mixed-sex wards and patient dignity: nurses' and patients' perspectives.’ British Journal of Nursing 17(19): 1220–1225.
• Baillie, L. (2009). ‘Patient dignity in an acute hospital setting: a case study.’ International Journal of Nursing Studies 46(1): 23–36.
• Biggs, S. et al. (2007). ‘UK Study of Abuse and Neglect of Older People: Prevalence survey report.’ London: National Centre for Social Research.
• Billings, J. A. (2008). ‘Dignity.’ Journal of Palliative Medicine 11(2): 138–9.
• Boyle, G. (2008). ‘Autonomy in long-term care: a need, a right or a luxury?’ Disability and Society 23(4): 299–310.
• British Geriatrics Society, Royal College of Physicians et al. (2009). ‘Advance care planning National guideline No.12 in the Concise Guidance to Good Practice Series.’
• Calnan, M. et al. (2006). ‘Dignity under threat? A study of the experiences of older people in the United Kingdom.’ International Journal of Health Services 36(2): 355–75.
• NHS End of life care programme and the National council for palliative care (2007). ‘Building on firm foundations: improving end of life care in care homes, examples of innovative practice.’
• Chochinov, H. (2007). ‘Dignity and the essence of medicine – the A, B, C, and D of dignity conserving care.’ British Medical Journal 335(7612): pp 184–187.
• Chochinov, H. M. (2006). ‘Dying, dignity, and new horizons in palliative end-of-life care.’ CA: a Cancer Journal for Clinicians 56(2): 84–103.
• Chochinov, H. M. et al. (2008). ‘The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care.’ Journal of Pain and Symptom Management 36(6): 559–71.
• Chochinov, H. M. et al. (2006). ‘Dignity in the terminally ill: revisited.’ Journal of Palliative Medicine 9(3): 666–72.
• Clark, A. (2009). ‘Ageism and age discrimination in social care in the United Kingdom. A review from the literature.’ Centre for Policy on Ageing.
• Commission for Social Care Inspection, (2008). ‘Safeguarding adults. A study of the effectiveness of arrangements to safeguard adults from abuse.’
• Cooper, C., A. et al (2009). ‘Abuse of people with dementia by family carers: representative cross sectional survey.’ British Medical Journal (338): 155.
• Coventry, M. L. (2006). ‘Care with dignity: a concept analysis.’ Journal of Gerontological Nursing 32(5): 42–8.
• Duncan, C. (2008). ‘The dangers and limitations of equality agendas as means for tackling old-age prejudice.’ Ageing and Society, 28(8), November 2008, 1133–1158.
• Dwyer, L. et al. (2008). ‘Three nursing home residents speak about meaning at the end of life.’ Nursing Ethics 15(1): 97–109.
• Franklin, L. et al. (2006). ‘Views on dignity of elderly nursing home residents.’ Nursing Ethics 13(2): 130–46.
• Gallagher, A., et al. (2008). ‘Dignity in the care of older people – a review of the theoretical and empirical literature.’ Biomed Central Nursing 7: p12.
• Giordano, J. (2006). ‘Hospice, palliative care, and pain medicine: meeting the obligations of non-abandonment and preserving the personal dignity of terminally ill patients.’ Delaware Medical Journal 78(11): 419–22.
• Gruenewald, D. A. and White. E. J. (2006). ‘The illness experience of older adults near the end of life: a systematic review.’ Anesthesiology Clinics 24(1): 163–80.
• Haak, N. (2009). ‘Maintaining privacy and dignity of patients admitted to a district general hospital NHS trust.’ Developing Practice Improving Care 5(2): 1–4.
• Hall, S. et al. (2009). ‘A Phase II randomised controlled trial assessing the feasibility, acceptability and potential effectiveness of dignity therapy for older people in care homes: study protocol.’ Biomed Central Geriatrics 9: 9.
• Hamilton, M. and Essat, Z. (2008). ‘Minority ethnic users’ experiences and expectations of nursing care.’ Journal of Research in Nursing 13(2): 102–110.
• Harrefors, C. et al. (2009). ‘Elderly people's perceptions of how they want to be cared for: an interview study with healthy elderly couples in Northern Sweden.’ Scandinavian Journal of Caring Sciences 23(2): 353.
• Healthcare Commission. (2007). ‘Caring for dignity: a national report on dignity in care for older people while in hospital.’
• Henwood, M. and Hudson, B. (2008). ‘Lost to the System? The Impact of Fair Access to Care’ (PDF file). London: Commission for Social Care Inspection
• Higgins, P.C. and Altilio, T. (2007). ‘Palliative sedation: an essential place for clinical excellence.’ Journal of Social Work in End-of-Life and Palliative Care 3(4): 3–30.
• Hirai, K. et al. (2006). ‘Good death in Japanese cancer care: a qualitative study.’ Journal of Pain & Symptom Management 31(2): 140–7.
• Holmerova, I. et al. (2007). ‘Dignity and palliative care in dementia.’ Journal of Nutrition, Health & Aging 11(6): 489–94.
• Iliffe, S. et al. (2008). ‘Can clinicians benefit from patient satisfaction surveys? Evaluating the NSF for Older People, 2005-2006 National Service Framework.’ Journal of the Royal Society of Medicine 101(12): 598–604.
• Jacobson, N. (2007). ‘Dignity and health: a review.’ Social Science and Medicine, 2(64), January 2007, 292–302.
• Kerr, D., Wilkinson, H., & Cunningham, C. (2008). ‘Supporting older people in care homes at night.’ Joseph Rowntree Foundation.
• Kumar, A. and N. Allcock (2008). ‘Pain in older people: reflections and experiences from an older person's perspective.’ Help the Aged.
• Macklin, R. (2003). ‘Dignity is a useless concept.’ British Medical Journal 20: 1419–1420.
• Magee, H. et al. (2008). ‘Measuring dignity in care for older people.’ Help the Aged.
• Mangset, M. et al. (2008). ‘”We're just sick people, nothing else”: ... factors contributing to elderly stroke patients' satisfaction with rehabilitation’. Clinical Rehabilitation 22(9): 825–835.
• Matiti, M. R. and Trorey. G. M. (2008). ‘Patients' expectations of the maintenance of their dignity.’ Journal of Clinical Nursing 17(20): 2709–2717.
• Matthews, L. et al. (2008). ‘The Human Rights Act - changing lives' (PDF file) The British Institute of Human Rights p 27.
• McClement, S. et al. (2007). ‘Dignity therapy: family member perspectives.’ Journal of Palliative Medicine 10(5): 1076–82.
• McPherson, C. J. et al. (2007). ‘Feeling like a burden to others: a systematic review focusing on the end of life.’ Palliative Medicine 21(2): 115–28.
• Melin-Johansson, C. et al. (2007). ‘Caregivers' perceptions about terminally ill family members' quality of life.’ European Journal of Cancer Care 16(4): 338–45.
• Ministers, local government, NHS, social care, professional and regulatory organisations (2007) Putting People First: A shared vision and commitment to the transformation of Adult Social Care (PDF file), HM Government.
• Nolan, M. et al. (2006). ‘The Senses Framework: improving care for older people through a relationship-centred approach.’ Getting Research into Practice Series, University of Sheffield.
• Nursing Times (2009). ‘Whistleblowing nurse Margaret Haywood reinstated.’
• Ostgathe, C. et al. (2008). ‘Cognitive failure in end of life.’ Current Opinion in Supportive and Palliative Care 2(3): 187–91.
• Owen, T. and Meyer, J. (2009). ‘Minimising the use of “restraint” in care homes: Challenges, dilemmas and positive approaches.’ London: Social Care Institute for Excellence.
• Pérez-Cárceles, M. D. et al. (2007). ‘Elderly patients also have rights.’ Journal of Medical Ethics 33(12): 712–716.
• Personal Social Services Research Unit (2009) National Evaluation of Partnerships for Older People Projects Final Report (PDF file)
• Philp, I. (2006). ‘A new ambition for old age – next steps in implementing the National Service Framework for Older People.’ London: Department of Health.
• Philp, I. and M. Richards (2006). ‘NHS End of Life Care Programme: progress report.’ Leicester, NHS end of Life Care Programme: p 26.
• Picker Institute (2008). ‘On our own terms: the challenge of assessing dignity in care’. Help the Aged.
• Pleschberger, S. (2007). ‘Dignity and the challenge of dying in nursing homes: the residents' view.’ Age & Ageing 36(2): 197–202.
• Porock, D. et al. (2009). ‘Dying in public: the nature of dying in an acute hospital setting.’ Journal of Housing For the Elderly, Volume 23, Issue 1 & 2 January 2009, pages 10–28.
• Royal college of Physicians and the British Society of Gastroenterology. (2010). ‘Oral feeding difficulties and dilemmas: A guide to practical care, particularly towards the end of life.’ London: Royal College Physicians.
• Royal College of Physicians. (2007). ‘Assessment of pain in older people. National guidelines.’ Concise guidance to good practice.
• Qureshi, H. (2009). ‘Restraint in care homes for older people: a review of selected literature.’ London: Social Care Institute for Excellence.
• Råholm, M-B. (2008). ‘Uncovering the ethics of suffering using a narrative approach.’ Nursing Ethics 15(1): 62–72.
• Read, S. and Morris, H. (2008). ‘Living and dying with dignity.’ London: Mencap.
• Roger, K. S. (2006). ‘A literature review of palliative care, end of life, and dementia.’ Palliative & Supportive Care 4(3): 295–303.
• Schofield, P. and Reid, D. (2006). ‘The assessment and management of pain in older people: a systematic review of the literature.’ International Journal on Disability and Human Development 5(1): 9–15.
• Seymour, J., Froggatt, K., and Kumar, A (2008). ‘End of life care in care homes: Understanding and mapping innovative solutions.’ University of Nottingham and University of Lancaster.
• Skorpen, A. et al. (2008). ‘The smoking-room as psychiatric patients' sanctuary: a place for resistance.’ Journal of Psychiatric & Mental Health Nursing 15(9): 728–736.
• Thompson, G. N. and Chochinov, H. M. (2008). ‘Dignity-based approaches in the care of terminally ill patients.’ Current Opinion in Supportive & Palliative Care 2(1): 49–53.
• Thornton, A. et al. (2003). ‘Distraction burglary amongst older adults and ethnic minority communities.’ London: Home Office.
• Volicer, L. (2007). ‘Goals of care in advanced dementia: quality of life, dignity and comfort.’ Journal of Nutrition, Health and Aging 11(6): Nov–Dec.
• Wainwright, R. (2009). ‘An overview of the UK domiciliary care sector.’ United Kingdom Homecare Association.
• Webster, C. and Bryan, K. (2009). ‘Older people's views of dignity and how it can be promoted in a hospital environment.’ Journal of Clinical Nursing 18(12): 1784–1792.
• Webster, J. et al. (2009). ‘Enabling dignity in care through practice development with older people.’ Practice Development in Health Care 8(1): 5–17.
• Woolhead, G. et al. (2006). ‘”Tu’ or ‘Vous?” A European qualitative study of dignity and communication with older people in health and social care settings.’ Patient Education & Counseling 61(3): 363–71.
• Zafir al-Shahri, M, and Al-Khenaizan, A. (2005). ‘Palliative Care for Muslim Patients.’ The Journal of Supportive Oncology (Vol 3, No 6): 432-436.
• Zwakhalen, S. M. G., et al. (2006). ‘Pain in elderly people with severe dementia: A systematic review of behavioural pain assessment tools.’ Biomed Central Geriatrics 6: 3 6(3).