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SCIE Practice guide 09: Dignity in care

References

Afshar, H., Franks, M. & Maynard, M. (2002) 'Women, ethnicity and empowerment in later life'. GO Findings, 1-4.

Age Concern (2006) Hungry to be heard: the scandal of malnourished older people in hospital (511kb PDF file).

Arino-Blasco, S., Tadd, W. & Boix-Ferrer, J. A. (2005) 'Dignity and older people'. Quality in Ageing: Policy Practice and Research, 6' 30-36.

Audit Commission (2004) Older people - independence and well-being: the challenge for public services. London, Audit Commission.

Barnes, M., Blom, A., Cox, K., Lessof, C. & Walker, A. (2006) 'New horizons: The social exclusion of older people: secondary analysis of the English longitudinal study of ageing', National Centre for Social Research and University of Sheffield.

Bayer, T., Tadd, W. & Krajcik, S. (2005) 'Dignity: the voice of older people'. Quality in Ageing: Policy Practice and Research, 6, 22-29.

BBC (1999) Doctor suspensions soar in wake of Bristol scandal. News.

BBC (2006) Nurses 'too busy to monitor food'.

Benn, M. (2000) 'Don't shoot the messenger'. Community Care. 20 January, 2000, p12.

Birrell, J., Thomas, D. & Jones, C. A. (2006) 'Promoting privacy and dignity for older patients in hospital'. Nursing Standard 20 41-46.

Blake, D. (2006) 'Adult protection, data collection and reporting requirements', London. Action on Elder Abuse.

British Association For Parenteral And Enteral Nutrition, I. L. C.-U., The Associate Parliamentary Food & Health Forum (2006) 'Malnutrition among older people in the community: policy recommendations for change'. European Nutrition for Health Alliance.

Butt, J. & O'Neill, A., (2004) 'Let's move on: Black and ethnic minority older people's views on research findings'. York, Joseph Rowntree Foundation.

Calnan, M., Woolhead, G. & Dieppe, P. (2003) 'Courtesy entitles'. Health Service Journal, 113, 30-31.

Calnan, M., Woolhead, G., Dieppe, P. & Tadd, W. (2005) 'Views on dignity in providing health care for older people'. Nursing Times, 101, 38-41.

Cantley, C., Woodhouse, J. & Smith, M. (2005) 'Listen to us: Involving people with dementia in planning and developing services'. Newcastle upon Tyne, Dementia North, Northumbria University.

Cardiff University (2001-2004) Dignity and Older Europeans: comparative analysis of data from older people’s focus groups from all centres. In Win, T. (Ed.) Dignity and Older Europeans.

Chochinov, H. M., Hack, T., Hassard, T., Kristjanson, L. J., Mcclement, S. & Harlos, M. (2002a) 'Dignity in the terminally ill: a cross-sectional, cohort study'. The Lancet, 360' 2026-2030.

Chochinov, H. M., Hack, T., Mcclement, S., Kristjanson, L. J. & Harlos, M. (2002b) 'Dignity in the terminally ill: a developing empirical model'. Social Science & Medicine, 54, 433-443.

Cloutterbuck, J. & Mahoney, D. F. (2003) 'African American dementia caregivers: the duality of respect'. Dementia: the International Journal of Social Research and Practice, 2,' 221-243.

Cobban, N. (2004) 'Improving domiciliary care for people with dementia and their carers: the Raising the Standard project', in Innes, A. et al. (eds), London, Jessica Kingsley.

Commission for Healthcare Audit and Inspection (2006) Living well in later life: A review of progress against the National Service Framework for Older People (2.42mb PDF file).

Commission for Patient and Public Involvement in Health (2006) 'Hospital food, could you stomach it?'

Commission for Social Care Inspection (2006) Highlight of the day? (747kb PDF file). London, CSCI.

Coverdale, J., Mccullough, L. B., Molinari, V. & Workman, R. (2006) 'Ethically justified clinical strategies for promoting geriatric assent'. International Journal of Geriatric Psychiatry, 21' 151-157.

CSIP, Care Services Improvement Partnership (2005) Everybody's Business: integrated mental health services for older adults - a service development guide. Department of Health.

Dadswell, T. (2000) 'Whistleblowing and Waterhouse', 2 March 2006, p2.

Davies, S., Laker, S. & Ellis, L. (1997) 'Promoting autonomy and independence for older people within nursing practice: a literature review'. Journal of Advanced Nursing, 26,' 408-417.

DH (1998) Modernising social services: promoting independence, improving protection, raising standards. London.

DH (2000) 'No secrets (158kb PDF file)': Guidance on developing and implementing multi-agency policies and procedures to protect vulnerable adults from abuse. London, Department of Health.

DH (2001) National Service Framework for Older People. London.

DH (2003a) Care homes for older people: national minimum standards (340kb PDF file) and the Care Homes Regulations 2001, London. The Stationery Office.

DH (2003b) Domiciliary care: National minimum standards (249kb PDF file). In Department of Health (Ed.). London, The Stationery Office.

DH (2003c) Essence of Care (384kb PDF file): patient-focused benchmarks for clinical governance. NHS Modernisation Agency.

DH (2004a) Seeking consent: working with older people, London, Department of Health.

DH (2004b) Better health in old age: a report from Professor Ian Philp, National Director for Older People’s Health to Secretary of State for Health. London, Department of Health.

DH (2004c) A toolkit for older people’s champions - a resource for non-executive directors, councillors and older people acting as older people’s champions. London, Department of Health.

DH (2004d) Towards cleaner hospitals and lower rates of infection, a summary of action. London, Department of Health.

DH (2004e) Standards for better health. London, Department of Health.

DH (2005a) Independence, well-being and choice: Our vision for the future of social care for adults in England. London, Department of Health.

DH (2005b) Now I feel tall (522kb PDF file): what a patient-led NHS feels like.

DH (2005c) NHS delivering better hospital food and cleanliness.

DH (2006a) Bournewood briefing sheet. London, Department of Health.

DH (2006b) Protection of Vulnerable Adults Scheme.

DH (2006c) 'About dignity in care'.

DH (2006d) Online survey into dignity in care.

DH (2006e) End of life care. End of life care.

DH (2006f) Our health, our care, our say: a new direction for community services. London, The Stationery Office, HM Government.

DH (2006g) Essence of care benchmarks for promoting health.

DH (2006h) A new ambition for old age: next steps in implementing the national service framework for older people: a report from Professor Ian Philp. London, Department of Health.

DH (2007) Independence, Choice and Risk: a guide to best practice in supported decision making. London Department of Health.

Dignity and Older Europeans Consortium (2004) Operational model of human dignity. Dignity and older Europeans (385kb PDF file). Deliverable 23 ed.

Dowling, S., Manthorpe, J., Cowley, S., King, S., Raymond, V., Perez, W. & Weinstein, P. (2006) 'Person-centred planning in social care: a scoping review'. York, Joseph Rowntree Foundation.

DWP (2005) Opportunity age: meeting the challenges of ageing in the 21st century (678kb PDF file).

Forte, D., Cotter, A. & Wells, D. (2006) 'Sexuality and relationships later in life'. Edinburgh, Elsevier Churchill Livingstone.

Franklin, L.-L., Ternestedt, B.-M. & Nordenfelt, L. (2006) 'Views on dignity of elderly nursing home residents'. Nursing Ethics: an International Journal for Health Care Professionals, 13,' 130-146.

Furness, S. (2006) 'Recognising and addressing elder abuse in care homes: views from residents and managers'. Journal of Adult Protection, 8, 33-49.

Godfrey, M., Randall, T., Long, A. & Grant, M. (2000) Home Care: review of effectiveness and outcomes (2.5mb PDF file). Cebbs reports, CEBSS/Nuffield Institute for Health, University of Leeds/ Health Care Practice R&D Unit, University of Salford.

Greene, A and Latting, J. K. (2004) 'Whistle-blowing as a form of advocacy', Social Work, Volume 49, Number 2, 1 April 2004, p219-230. National Association of Social Workers, p219-230.

Griffin-Heslin, V. L. (2005) 'An analysis of the concept dignity'. Accident and Emergency Nursing, 13' 251-257.

Haddock, J. (1996) 'Towards further clarification of the concept "dignity"'. Journal of Advanced Nursing, 24,' 924-931.

Harding, T. (2005) 'Rights at risk'. London, Help the Aged.

Health and Safety Executive (2006) Whistleblowing.

Healthcare Commission, Audit Commission & Commission for Social Care Inspection (2006) Good practice in services for older people (434kb PDF file)

Help the Aged & Royal College Of Nursing (2000) 'Dignity on the ward: improving the experience of acute hospital care for older people with dementia or confusion - a pocket guide for hospital staff', London, Help the Aged

Heymanson, C. (2003) 'Sexuality and intimacy in care homes'. Journal of Dementia Care, 11, 10-11.

Hickman, S. E. (2004) 'Ageing matters. Honoring resident autonomy in long-term care: special considerations'. Journal of Psychosocial Nursing and Mental Health Services, 42, 12-16.

High Court Of Justice, Q. S. B. D. (2003) 'Decision in the case of the Disability Rights Commission v East Sussex County Council' [2003] EWHC 167 (Admin).

High Court Of Justice, Q. S. B. D. (2006)' Decision in the case of Johnson and others v London Borough of Havering and others'. [2006] EWHC 1714 (Admin). London, High Court of Justice.

Holihead, M. (2000) 'Whistling the same tune', Community Care, 20th January, 2000, p20-21.

Home Office (2004) 'Firm foundations: the government's framework for community capacity building'. London, Home Office.

Horton, R. (2004) 'Rediscovering human dignity'. The Lancet, 364, 1081-1085.

Housing Learning & Improvement Network, Care Services Improvement Partnership (2006) 'Dignity in housing'.

House Of Commons Health Committee (2004) 'Elder Abuse - Second Report: Session 2003-2004'. In Health Committee, H. O. C. (Ed.) 1 ed. London, The Stationery Office.

Innes, A., Macpherson, S. & Mccabe, L. (2006) 'Promoting person-centred care at the front line', York, Joseph Rowntree Foundation/SCIE.

Jacelon, C. S. (2003) 'The dignity of elders in an acute care hospital'. Qualitative Health Research, 13, 543-556.

Jacelon, C. S. (2004) 'Older adults and autonomy in acute care: increasing patients' independence and control during hospitalization'. Journal of Gerontological Nursing, 30, 29-36.

Jacelon, C. S., Connelly, T. W., Brown, R., Proulx, K. & Vo, T. (2004) 'A concept analysis of dignity for older adults'. Journal of Advanced Nursing, 48, 76-83.

JRF (2004) 'Using interpreters to access services: user views'. JRF Findings. York, Joseph Rowntree Foundation.

JRF (2005) The older people's inquiry: 'That little bit of help' (108kb PDF file). JRF Briefings. York, Joseph Rowntree Foundation.

Kerry County Development Board (2006) 'Glossary'.

King's Fund (2000) 'Briefing note: age discrimination in health and social care', London, King's Fund.

Law, M., Baptiste, S., Carswell, A., Mccoll, M. A., Polatajko, H. & Pollock, N. (2005) 'The Canadian Occupational Performance Measure (COPM)'. 4th ed. Ottawa, Canadian Association of Occupational Therapists.

Macdonald, A. J. D., Malouf, P., Paulus, F., (2001) 'Maintaining older people's dignity and autonomy in healthcare settings. Whole system must be looked at to prevent degrading treatment'. BMJ (British Medical Journal), 323, 340-340.

Martin, B. (1999) 'The Whistleblower's Handbook', Oxfordshire, Jon Carpenter Publishing.

Matiti, M. R. & Trorey, G. (2004) 'Perceptual adjustments levels: patients' perceptions of their dignity in the hospital setting'. International Journal of Nursing Studies, 41, 735-744.

McIntyre, L. & Woodruff, N. (2006) 'Essence of Care: Addenbrooke's Standards for Privacy an Dignity - an Audit Summary'. Cambridge University Hospitals NHS Foundation Trust.

McNeil, J. K. (1995) 'Effects of non professional home visit programmes for sub-clinically unhappy and unhealthy older adults'. Journal of Applied Gerontology, 14, 333-42.

Menzies, I. E. P. (1977) 'The function of social systems as a defence against anxiety: a report of a study on the nursing service of a general hospital'. London, Tavistock Institute of Human Resources.

Nelson, T. D. (2005) 'Ageism: prejudice against our feared future self'. Journal of Social Issues, 61' 207-221.

Owen, T. and National care homes research and development forum (Eds) (2006) My Home Life: Quality of life in care homes - short report (1.81mb PDF file). London, Help the Aged. See also My Home Life: Quality of life in care homes - summary (130kb PDF file) and My Home Life: Quality of life in care homes - literature review (794kb PDF file)

Patmore, C. & Mcnulty, A., (2005) 'Making home care for older people more flexible and person-centred: factors which promote this'. York, University of York: Social Policy Research Unit.

PG Professional and the English Community Care Association (2006) 'Care Homes: through the eyes of the consumer'. London, English Community Care Association.

PRIAE/Help The Aged (2001) 'Dignity on the ward: towards dignity: acting on the lessons from hospital experiences of black and minority ethnic older people' - a report from Policy Research Institute on Ageing and Ethnicity for the Dignity on the Ward Campaign, London, Help the Aged.

Randers, I. & Mattiasson, A.-C. (2004) 'Autonomy and integrity: upholding older adult patients' dignity'. Journal of Advanced Nursing, 45, 63-71.

Sayers, G. M. & Nesbitt, T, (2002) 'Ageism in the NHS and the Human Rights Act 1998: an ethical and legal enquiry'. European Journal of Health Law, 9, 5-18.

Scott, P. A., Valimaki, M., Leino-Kilpi, H., Dassen, T., Gasull, M., Lemonidou, C. & Arndt, M. (2003a) 'Autonomy, privacy and informed consent 3: elderly care perspective'. British Journal of Nursing, 12, 158-68.

Scott, P. A., Valimaki, M., Leino-Kilpi, H., Dassen, T., Gasull, M., Lemonidou, C., Arndt, M., Schopp, A., Suhonen, R. & Kaljonen, A. (2003) Perceptions of autonomy in the care of elderly people in five European countries. Nursing Ethics, 10, 28-38.

SEU / ODPM (2006) 'A sure start to later life: ending inequalities for older people: final report', London, Social Exclusion Unit/Office of the Deputy Prime Minister.

Shore, P. & Santy, J. (2004) 'Orthopaedic nursing practice and elder abuse'. Jounal of Orthopaedic Nursing, 9, 103-108.

Sidenvall, B. (1999) 'Meal procedures in institutions for elderly people: a theoretical interprestation'. Journal of Advanced Nursing, 30, 319-328.

Social Exclusion Unit & Office of the Deputy Prime Minister (2006) 'A sure start to later life: ending inequalities for older people: final report'. London, Social Exclusion Unit.

Springfield, F. (2002) 'Lesbians, gays and transsexuals in care homes'. Nursing and Residential Care, 4, 586-8.

Stratton, D. & Tadd, W. (2005) 'Dignity and older people: the voice of society'. Quality in Ageing: Policy Practice and Research, 6, 37-45.

Street, A. F. & Love, A. (2005) 'Dimensions of privacy in palliative care: views of health professionals'. Social Science & Medicine, 60, 1795-1804.

Tadd, W. (2005) 'Dignity, older people, health and social care'. Dignity and Older Europeans, Cardiff University.

Townsend, P. (2006) 'Policies for the aged in the 21st century: more 'structured dependency' or the realisation of human rights?' Ageing and Society, 26, 161-179.

Turnock, C.& Kelleher, M (2001) 'Maintaining patient dignity in intensive care settings'. Intensive and Critical Care Nursing, 17, 144-154.

Van Den Hende, R. (2001) 'Public concern at work: supporting public-interest whistle blowing'. Journal of Adult Protection, 3, 41-44.

Wanless, D. (2006) 'Securing good care for older people. Taking a long-term view'. London, King's Fund.

Wikipedia (2006) 'Respect'.

Woogara, J. (2005) 'Patients' rights to privacy and dignity in the NHS'. Nursing Standard 19, 33-37.

Woolhead, G., Calnan, M., Dieppe, P. & Tadd, W. (2004) 'Dignity in older age - what do older people in the United Kingdom think?' Age and Ageing, 33, 165-169.

Wright, M. (2006) 'A voice that wasn't speaking. Older peopleuUsing advocacy and shaping its development'. Stoke-on-Trent, Older People's Advocacy Alliance (OPAAL) UK.

Woogara, J. (2005) 'Patients' rights to privacy and dignity in the NHS'. Nursing Standard 19, 33-37.

Woolhead, G., Calnan, M., Dieppe, P. & Tadd, W. (2004) 'Dignity in older age - what do older people in the United Kingdom think?' Age and Ageing, 33, 165-169.

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