SCIE Resource guide 9: Working together to support disabled parents
Organisations
Advocacy Resource Exchange (ARX)
Advocacy Resource Exchange supports the provision of independent advocacy for disabled and disadvantaged people in England and Wales. The ARX web site provides details of local advocacy schemes throughout the UK.
| Address | 162 Lee Valley Technopark, Ashley Road, Tottenham Hale, London N17 9LN |
| arx@advocacyresource.net | |
| Tel | 020 8880 4545/4547 |
| Web | www.advocacyresource.net |
Alcohol Concern
| Address | Alcohol Concern, First floor, 8 Shelton St., London WC2H 9JR |
| contact@alcoholconcern.org.uk | |
| Tel | 020 7395 4000 |
| Web | www.alcoholconcern.org.uk |
British Council of Disabled People/United Kingdom’s Disabled People’s Council (BCODP)
BCODP is the national body representing organisations of disabled people. Local organisations that belong to BCODP are listed on their website. See the Member Groups’ Directory.
| Address | Litchurch Plaza, Litchurch Lane, Derby DE24 8AA |
| general@bcodp.org.uk | |
| Tel | 01332 295551 (Text: 01332 295581) |
| Web | www.bcodp.org.uk |
CAN Drug Alcohol and Homelessness Teams
CAN is an independent regional agency which provides a range of drug, alcohol and homelessness services throughout Northamptonshire and Bedfordshire
| Address | 81 St. Giles Street, Northampton NN1 1JF |
| administration@can.org.uk | |
| Tel | 01604 622121 |
| Web | www.can.org.uk |
CHANGE
CHANGE is an organisation of and for people with learning difficulties and runs a national campaign for parents with learning difficulties who have found it hard to find support for their parenting. CHANGE is funded by the Department for Education and Skills to produce resources aimed at parents with learning difficulties and those who work with them which are listed in the references section.
| Address | Units 19/20, Unity Business Centre, 26 Roundhay Road, Leeds LS7 1AB. |
| info@changepeople.co.uk | |
| Tel | 0113 243 0202 (Fax: 0113 242 0220) |
| Web | www.changepeople.co.uk |
Deaf Parenting UK (DPUK)
Deaf Parenting UK is a charity run by Deaf parents for Deaf parents. It represents the needs of 9 million Deaf parents in the UK, who have hearing children, deaf children or children with disability. DPUK was established following research into gaps in services for Deaf parents within the UK.
| Address | c/o Dering Employments Services,
96 Park Lane,
Croydon, |
| info@deafparent.org.uk | |
| Tel | SMS: 07789 027186 |
| Web | www.deafparent.org.uk |
Disability Alliance (DA)
DA publishes the Disability Rights Handbook, which is updated each year. The DA website regularly produces updated information for disabled people on benefits, tax credits and community care.
| Address | Universal House, 88-94 Wentworth Street, London E1 |
| office.da@dial.pipex.com | |
| Tel | 020 7247 8763 (voice and minicom) |
| Web | www.disabilityalliance.org |
Disability, Pregnancy and Parenthood international (DPPi)
DPPi provides an information service to help disabled parents and professionals with enquiries. For details of current and forthcoming information sheets on a range of practical issues ring the helpline or see the website. Back copies of Disability, pregnancy and parenthood international journal can be seen on the website. DPPi has a reference collection of information and resources that can be seen by arrangement.
| Address | National Centre for Disabled Parents, Unit F9, 89-93 Fonthill Road, London N4 3JH |
| office@dppi.org.uk (office) or info@dppi.org.uk (enquiries) | |
| Tel | 020 7263 3088 (information service: 0800 018 4730; text: 0800 018 9949) |
| Web | www.dppi.org.uk |
Disabled Parents Network (DPN)
DPN is an organisation of and for disabled parents. Its activities include running a helpline operated by disabled parent volunteers, a web-based discussion forum and publishing a regular e-bulletin. DPN members undertake consultation and training aimed at improving services to disabled parents.
| Address | 81 Melton Road, West Bridgford, Nottingham, NG2 8EN |
| information@DisabledParentsNetwork.org.uk | |
| Tel | 0870 241 0450 (helpline and general contact number) |
| Web | www.DisabledParentsNetwork.org.uk |
Equalities
Equalities is a national organisation of disabled people and carers from black and minority ethnic communities.
| Address | Waltham Forest College, Forest Road, London E17 4JB |
| enquiries@equalitiesnational.org.uk | |
| Tel | 020 8527 3211 |
| Web | www.encweb.org.uk |
Family and Parenting Institute (FPI)
Previously the National Family and Parenting Institute. FPI carries out research, campaigns for a 'family-friendly’ society and produces publications on parenting and family life.
| Address | 430 Highgate Studios, 53-79 Highgate Road, London NW5 1TL |
| info@nfpi.org | |
| Tel | 020 7424 3460 (Publications: 01787 249 287) |
| Web | www.nfpi.org/ (with a parents’ section at www.e-parents.org/) |
Family Rights Group (FRG)
FRG provides advice and support for families whose children are involved with social services. Opening hours: Monday to Friday, 10 am to 12 pm and 1.30 pm to 3.30 pm
| Address | The Print House, 18 Ashwin Street, London E8 3DL |
| office@frg.org.uk | |
| Tel | 020 7923 2628 (Advice line: 0800 7311696 - opening hours as above) |
| Web | www.frg.org.uk |
Family Welfare Association (FWA)
The FWA runs family centres, innovative support projects and drop-in centres for parents under pressure and with additional support needs.
| Address | 501-505 Kingsland Road, London E8 4AU |
| fwa.headoffice@fwa.org.uk | |
| Tel | 020 7254 6251 |
| Web | www.fwa.org.uk |
Fathers Direct
Fathers Direct is a national information centre on fatherhood. It conducts research and runs campaigns, conferences and workshops.
| Address | Herald House, Lamb's Passage, Bunhill Row, London EC1Y 8TQ |
| mail@fathersdirect.com | |
| Tel | 0845 634 1328 |
| Web | www.fathersdirect.com |
Mencap Accessibility Unit
Mencap’s Accessibility Unit publishes a guide on writing accessible documents, can edit documents or write accessible documents and publishes a guide on making websites accessible to people with learning disabilities. See Resources for details.
| Address | 123 Golden Lane, London EC1Y 0RT |
| accessibility@mencap.org.uk | |
| Tel | 020 7696 5551 |
| Web | www.mencap.org.uk |
National Centre for Independent Living (NCIL)
The NCIL campaigns for independent living and direct payments and supports people in achieving this.
| Address | 250 Kennington Lane, London SE11 5RD |
| ncil@ncil.org.uk | |
| Tel | 020 7587 1663 (Text: 020 75871177) |
| Web | www.ncil.org.uk |
Parental Mental Health and Child Welfare Network
The Parental Mental Health and Child Welfare Network is for social care and health workers who work with parents with a mental health problem or their children. It has been set up to promote joint working between adult mental health and children's services. The network’s website is a sub site of the Social Care Institute for Excellence (SCIE).
| Address | Parental Mental Health and Child Welfare Network, Social Care Institute for Excellence (SCIE), Goldings House, 2 Hay's Lane, London SE1 2HB |
| mhnetwork@scie.org.uk | |
| Tel | 020 7089 6840 |
| Web | www.scie.org.uk/mhnetwork/index.asp |
Parentline Plus
Parentline Plus runs a 24-hour helpline for parents under stress. It runs training courses for parents and professionals. It also organises telephone support groups for parents.
| Address | Unit 520, Highgate Studios, 53-57 Highgate Road, London NW5 1TL |
| headoffice@parentlineplus.org.uk | |
| Tel | 020 7284 5500 (Helpline: 0800 783 6783) |
| Web | www.parentlineplus.org.uk |
People First
People First is a local, national and international movement run by and for people with learning difficulties.
| Address | Central England People First, PO Box 5200, Northampton NN1 1ZB |
| northants@peoplefirst.org.uk | |
| Tel | 01604 721 666 |
| Web | www.peoplefirst.org.uk |
Positive Parents and Children
PPC aims to improve the quality of life for children affected by HIV/AIDS by providing information to parents and training for people working with children. Mainly London-based, its services include home-based family support.
| Address | Unit 64 Eurolink Business Centre, 49 Effra Road, London SW2 1BZ |
| office@ppclondon.org.uk | |
| Tel | 020 7338 7333 |
| Web | www.ppclondon.org.uk |
Race Equality Foundation
Formerly the REU. The Race Equality Foundation promotes race equality in social support and social care.
| Address | Unit 35 Kings Exchange, Tileyard Road, London N7 9AH |
| Tel | 0207 619 6220 |
| Web | www.reu.org.uk |
Sure Start
Sure Start is a government programme for England which aims to improve outcomes for children, parents and communities.
| Address | Sure Start, Department for Education and Skills and Department for Work and Pensions, Level 2, Caxton House, Tothill Street, London SW1H 9NA |
| info.surestart@dfes.gsi.gov.uk | |
| Tel | 0870 000 2288 |
| Web | www.surestart.gov.uk |
Through the Looking Glass (TLG)
TLG is a centre in the United States that has researched and published information about adaptive equipment, services and training for families in which a child, parent or grandparent is disabled.
| Address | 2198 Sixth Street, Suite 100, Berkeley, CA 94710-2204 USA |
| TLG@lookingglass.org | |
| Tel | |
| Web | www.lookingglass.org |
Working Together with Parents Network
The Working Together with Parents Network is a network of: parents and carers with learning disabilities; professionals working with people with learning disabilities; statutory and voluntary organisations and other individuals or organisations with an interest in the area. The network aims to spread positive practice and to promote policy change, so that parents with learning disabilities and their children can get better support.
| Address | c/o Norah Fry Research Centre, 3 Priory Rd, Bristol BS8 1TX |
| Sammantha.cave@bristol.ac.uk | |
| Tel | 0117 331 0987 |
| Web | http://www.bristol.ac.uk/norahfry/right-support/ |
