The Road Ahead – Literature review

9. References

  1. Armstrong, D. and Davies, P. (1995) 'The transition from school to adulthood: aspirations and careers advice for young adults with learning and adjustment difficulties', British Journal of Special Education, 22 (2), pp.70-75.
  2. Barnardo's, (undated), My Voice, My Choice. Transition to Adulthood.
  3. Bent, A., Tennant, A., Swift, T., Posnett, J., Scuffham, P and Chamberlain, M.A. (2002) 'Team approach versus ad hoc health services for young people with physical disabilities: a retrospective cohort study', The Lancet, 360,Oct 26 2002 pp.1280-1286.
  4. Beyer, S., Goodere, L. & Kilsby, M. (1996) The Costs and Benefits of Supported Employment Agencies, London: Department for Education and Employment.
  5. Bignall, T & Butt, J. (2000) Between Ambition and Achievement: Young Black Disabled People's Views and Experiences of Independence and Independent Living. Bristol: Policy Press.
  6. Bjarnason, D. (2002) 'New voices in Iceland: Parents and adult children: juggling supports and choices in time and space', Disability and Society , 17(3), pp.307-326.
  7. Blacher, J. (2001) 'Transition to adulthood: mental retardation, families and culture', American Journal on Mental Retardation, 106(2), 173-188.
  8. Bond, H. (1999) 'Difficult transitions', Community Care, 29 th July - 4 th August 1999 pp.14-15.
  9. Cameron, L. and Murphy, J. (2002) 'Enabling young people with a learning disability to make choices at a time of transition, British Journal of Learning Disabilities, 30, 105-112.
  10. Carnaby, S., Lewis, P., Martin, D., Naylor, J., and Stewart, D. (2003) 'Participation in transition review meetings: a case study of young people with learning disabilities leaving a special school, British Journal of Special Education, 30 (4), pp.187-193
  11. Carpenter, B. (2002) Count Us In: report of the inquiry into meeting the mental health needs of young people with learning disabilities. London: Foundation for People with Learning Disabilities.
  12. Choices Advocacy (undated) Transition. Young People Said. Southampton: Choices Advocacy
  13. Clegg, J., Sheard, C., Cahill, J. and Osbeck, L. (2001) 'Severe intellectual disability and transition to adulthood', British Journal of Medical Psychology, 74 (part 2), pp.151-66.
  14. Collaborative Group for Learning Disability Research in the North West (undated) 'The transition towards adult life for school leavers with moderate learning difficulties; Research Digest, Issue no. 4.
  15. Cooney, B. (2002) 'Exploring perspectives on transition of youth with disabilities: voices of young adults, parents and professionals', Mental Retardation , 40(6), pp.425 -435.
  16. Cowen, A. (2001) Room to Move. A Book for Parents of Young People with Learning Disabilities Leaving Home. Brighton: Pavilion Publishing/Joseph Rowntree Foundation.
  17. Dee, L. and Byers, R. (2003) 'Facilitating transitions for people with profound and complex learning difficulties', Journal of Integrated Care, 11 (3), pp 34-38.
  18. Department of Health (2001) Valuing People: A New Strategy for Learning Disability in the 21 st Century. London: Department of Health.
  19. Department of Health (2003) National Service Framework for Children. External Working Group on Disabled Children: 'Work in Progress' Document. www.doh.gov.uk/nsf/children/externalwgdisabled.htm
  20. Edinburgh Youth Social Inclusion Partnership (2001) Learning by Doing Real Choices. www.youthinclusion.org.
  21. Florian, L., Dee, L., Byers, R. and Maudslay, L. (2000) 'What happens after the age of 14? Mapping transitions for pupils with profound and complex learning difficulties', British Journal of Special Education, 27(3), pp.124-128.
  22. Florian, L., Maudslay, L., Dee, L. and Byers, R. (2000) 'What happens when schooling ends? Further education opportunities for students with profound and complex learning difficulties', The Skill Journal, 67, pp.16-23.
  23. Geenen, S., Powers, L. and Sells, W. (2003) 'Understanding the role of health core providers during the transition of adolescents with disabilities and special health care needs', Journal of Adolescent Health, 32, pp.225-233.
  24. Goupil, G., Tassé, M., Garcin, N. and Doré, C. (2002) 'Parent and Teacher perceptions of individualised transition planning', British Journal of Special Education, 29(3), pp127-135.
  25. Grove, B. and Giraud-Saunders, A. (2003) 'Connecting with Connexions - the role of the personal adviser with young people with special educational and support needs', Support for Learning, 18(1), pp.12-17.
  26. Hatton, C. (2002) 'Psychosocial interventions for adults with intellectual disabilities and mental health problems: a review', Journal of Mental Health, 11 (4), pp 357-373.
  27. Hendey, N. and Pascall, G. (2001) Disability and Transition to Adulthood: Achieving Independent Living. Brighton: Pavilion.
  28. Heslop, P., Mallett, R. Simons, K. & Ward, L. (2002) Bridging the Divide at Transition. What Happens for Young People with Learning Difficulties and their Families? Kidderminster: British Institute of Learning Disabilities.
  29. Hudson, B. (2003), 'From adolescence to young adulthood: the partnership challenge for learning disability services in England', Disability and Society, 18(3), pp.259-276.
  30. Hussain, Y., Atkin, K. and Ahmad, W. (2002) South Asian Disabled Young People and Their Families. Bristol: The Policy Press.
  31. Jacobsen. Y (2003) 'Making the jump into employment', Adults Learning , February 2003, pp 25-27.
  32. King, N. (2000) Leaving Home, Moving On. London: Mental Health Foundation.
  33. Life Options (no date) The Life Options Information Service. Missing publication details.
  34. McAnespie, B., Kitteringham, J. & Corbett, J. (2000) 'Vocational education and training to support the transition of young people with learning difficulties to paid employment', Skill Journal Research Supplement, Issue No. 66, March 2000, pp. 1-7.
  35. McConkey, R. & Smyth, M. (2003) 'Parental perceptions of risks with older teenagers who have severe learning difficulties contrasted with the young people's views and experiences', Children and Society, 17, pp. 18-31.
  36. McNair, J. & Rusch, R. (1991) 'Parent involvement in transition programs', Mental Retardation, 29 (2), pp. 93-101.
  37. Mitchell, W. (1999) 'Leaving special school: the next stop and future aspirations', Disability and Society, 14 (6), pp. 753-769.
  38. Mitchell, W. & Sloper, P. (2000) User-friendly Information for Families with Disabled Children. A Guide to Good Practice. York: York Publishing Services/Joseph Rowntree Foundation.
  39. Morgan, H. (2003) 'Count us in: the inquiry into meeting the mental health needs of young people with learning disabilities', Tizard Learning Disability Review 8 (3), pp. 37-43.
  40. Morris, J. (1999) Hurtling into a Void. Transition to Adulthood for Young Disabled People with 'Complex Health and Support Needs. Brighton: Pavilion/Joseph Rowntree Foundation.
  41. Morris, J. (2001) 'Social exclusion and young disabled people with high levels of support needs', Critical Social Policy, 21 (2), pp. 161-183.
  42. Morris, J. (2002) 'Young disabled people moving into adulthood', Foundations, York, Joseph Rowntree Foundation, June 2002.
  43. Morrow, V. & Richards, M. (1996) Transitions to Adulthood. A Family Matter? York: Joseph Rowntree Foundation.
  44. National Assembly for Wales (2004) National Service Framework for Children, Young People and Maternity Services. External Working Group on Disabled Children. Draft Standards. www.wales.nhs.uk/nsf
  45. O'Sullivan, T. (2001) Young Adults Transition Project: Draft Summary, London: Optimum Health Services NHS Trust (now Community Health South London NHS Trust).
  46. Pearson, M., Flynn, M., Maugham, J. & Russell, P. (no date) Positive Health in Transition. A Guide to Effective and Reflective Transition Planning for young People with Learning Disabilities. Manchester: National Development Team.
  47. Pennington, S. (2001) 'Two of a Kind', Guardian Society, Wednesday November 14 th 2001, pp. 5.
  48. Qualifications & Curriculum Authority (2003) 'Supporting leavers with learning difficulties in moving from school to college', www.qca.org.uk/ca/inclusion/transition.asp
  49. Rabiee, P. (2000) 'Mind the Gap', www.communitycare.co.uk.
  50. Rowland-Crosby, N., Giraud-Saunders, A. & Donlon, P. (2002) Developing Connexions. Young People with Disabilities, Mental Health Needs or Autism. First Interim Report, October 2002. London: Institute for Applied Health and Social Policy.
  51. Rowland-Crosby, N., Donlon, P. and Giraud-Saunders, A. (2003a) Developing Connexions. Young people with Disabilities, Mental Health Needs or Autism. Second Interim Report, May 2003. London: Institute for Applied Health & Social Policy.
  52. Rowland-Crosby, N., Giraud-Saunders, A. and Donlon, P. (2003b) Developing Connexions. Young People with Disabilities, Mental Health Needs or Autism. Third Interim Report, October 2003. London: The Foundation for People with Learning Disabilities.
  53. Rosen, D. (1995) 'Between two worlds: bridging the cultures of child health and adult medicine', Journal of Adolescent Health, 17, pp. 10-16.
  54. Russell, P. (2003) 'Planning positive transitions - the role of Connexions', paper presented to the Foundation for People with Learning Disabilities' e-conference Count Us In: Meeting the Mental Health Needs of Young People with Learning Disabilities, July 2003.
  55. Sinson, V (1995) Care in the Community for Young People with Learning Disabilities - The Client's Voice, London: Jessica Kingsley.
  56. Skill (2003) Aasha: Working with Young People with a Learning Difficulty from a South Asian Background. London: Skill.
  57. Small, N., Pawson, N. & Raghavan, R. (2003) ''Choice Biography' and the importance of the social', British Journal of Learning Disabilities , 31, pp. 159-165.
  58. Smyth, M. & McConkey, R. (2003) 'Future aspirations of students with severe learning disabilities and of their parents on leaving special schooling', British Journal of Learning Disabilities, 31, pp. 54-59.
  59. Stewart, D. & Ray, C. (2001) 'Ensuring entitlement: Sex and relationships education for disabled children', Forum Factsheet, Sex Education Forum. London: National Children's Bureau.
  60. Thoma, C., Rogan, P., Baker, S. (2001) 'Student involvement in transition planning: unheard voices', Education and Training in Mental Retardation and Developmental Disabilities, 36 (10), pp16-29.
  61. Thorin, E., Yovanoff, P. & Irvin, L. (1996) 'Dilemmas forced by families driving their young adults' transitions to adulthood: a brief report', Mental Retardation, 34 (2), pp. 117-120.
  62. Thornton, P. (2002) 'Disability' (focus on transition issues), Research Matters Oct. 2002 - April 2003.
  63. Tisdall, K. (1994) 'Why not consider citizenship?: a critique of post-school transitional models for young disabled people', Disability & Society, 9 (1), pp. 3-17.
  64. Valuing People Support Team (2003) Information Pack for Transition Champions . www.valuingpeople.gov.uk/Transition.htm
  65. Ward, L., Mallett, R., Heslop, P. & Simons, K. (2003a) 'Transition planning: how well does it work for young people with learning disabilities and their families?', British Journal of Special Education, 30 (3), pp. 132-137.
  66. Ward, L., Heslop, P., Mallett, R. & Simons, K. (2003b) 'Gap Years', Community Care, February 20 th 1003, www.communitycare.co.uk.
  67. Ward, L., Mallett, R., Heslop, P. & Simons, K. (2003c) 'Planning for health at transition', Learning Disability Practice, 6 (3), pp. 24-27.
  68. Ward, L., Heslop, Mallett, R. & Simons, K. (2003d) 'Transition: The experiences of young people with learning disabilities and their families in England', Tizard Learning Disability Review, 8 (4), pp. 19-28.
  69. Williams, V. (2003) 'Looking back at transition', paper presented to the Foundation for People with Learning Disabilities' e-conference Count Us In: Meeting the Mental Health Needs of Young People with Learning Disabilities, July 2003.
  70. Williams, V. (2004) Young People with Learning Disabilities and Emotional Distress at Transition: How Can Connexions Help?. Internal research paper available from Norah Fry Research Centre.
  71. Williams, V. and Heslop, P. (in press) ' Mental health support needs of people with a learning disability: a medical or a social model?', submitted to Disability and Society.
  72. Zetlin and Turner, 1985 quoted in Clegg et al, 2001.