The Road Ahead – Resources

2. National information for professionals and partnership boards

General - covering most aspects of transition
N13: All Change Transition into adult life - a resource for young people with learning difficulties, family carers and professionals, by Robina Mallett & Margaret Power (of HFT) and Pauline Heslop (Norah Fry Research Centre)
Target Audience Young people with learning difficulties, family carers and professionals.
Content A 246-page folder for young people with learning difficulties, carers and professionals. In two parts. Part 1 is for adults who are supporting young people through transition. It includes sections on planning, choices, adult services, living life to the full. Part 2 is for the young people themselves and includes sections on transition, planning for the future, new choices and becoming an adult.
Availability & Updates Available via Pavilion Publishing. £65.95. Parts of the pack are photocopiable. Written in 2003. No information on updates.
Contact
Home Farm Trust/ Norah Fry Research Centre Pavilion Publishing (Brighton) Ltd The Ironworks Cheapside Brighton, BN1 4GD Tel: 01273 623222 Fax: 01273 625526 Email: info@pavpub.com Web: www.pavpub.com
N14: Growing up - A guide to some information sources for young disabled people and their families, by National Children's Bureau and Council for Disabled Children
Target Audience Disabled young people, their families and professionals.
Content 100 page+ ring-bound book. Lists a wide range of information sources that will help disabled young people and families make decisions on topics such as education, employment, benefits, personal and social relationships and leaving home.
Availability & Updates Available from the Council for Disabled Children (NCB). £12. Also available on disk at the same price. Not written in an accessible format. Published 1998.
Contact National Children's Bureau 8 Wakley Street London, EC1V 7QE Tel: 020 7843 6000 Web: www.ncb.org.uk Book Sales Tel: 0207843 6029 Email: booksales@ncb.org.uk
N15: Families Leading Planning: Looking to the future, by National Development Team
Target Audience Young people with learning disabilities, their families, carers and professionals.
Content A pack, containing information about Person Centred Planning. Photocopiable resources. CD Rom included. Focus is on Person Centred Planning at transition. Pack is two main parts - a guide which includes the information needed to make an 'Essential Lifestyle Plan' and 'Pages to Complete' to write in, some with the person whose plan is being developed.
Availability & Updates Produced in 2003. No information on updates. Includes information on how to join a web-based discussion group.
Contact Inclusion distribution Tel: 01473 836440 Email: sales@inclusiononline.co.uk Web: www.inclusiononline.co.uk
N16: Action 19+, by Scope
Target Audience Disabled people, carers and advocates.
Content A guide to getting what you need from your local authority at 19+, free newsletter, video, telephone advice and information, speakers and workshop leaders.
Availability & Updates National steering group meets regularly to co-ordinate work of the project and refer to 60 local groups. Available from Action 19+. £5 to disabled people, parents, advocates and carers and £10 to others. Updated in 2003 to include new chapter on transition to adult services and changes in the law.
Contact Action 19+, C/o Scope Campaigns 6 Market Road London, N7 9PW Tel: 0171 619 7253 Email: campaigns@scope.org.uk
N17: TransPlan - Your guide to successful transition from school to adult life for young people age 13-19 with additional education needs, by Facilitating Inclusion North East (FINE)
Target Audience Young people age 13-19 with additional educational needs, parents, carers and organisations.
Content A CD Rom which is divided into sections for young people age 13-19 with additional educational needs, parents, carers and organisations. Written in plain English. Contains 13 sample forms and information leaflets and over 80 links. Young people, parents and carers guides available orally.
Availability & Updates Available from FINE. Produced in 2002. No information on updates.
Contact Facilitating Inclusion North East North East SEN Regional Partnership Government Office for the North East Wellbar House Gallowgate Newcastle-upon-Tyne, NE1 4TD Tel: 0191 202 3587 Fax: 0191 202 3510 Web: www.fine-partnership.org.uk
N18: SNAP Cymru (Special Needs Advisory Project)
Target Audience Families of children with special educational needs.
Content Information sheets about supporting children with special educational needs. Newsletter - 'Snapshot'. Covers most parts of Wales.
Availability & Updates Includes a sheet about choices after 16 with basic information about further education. Career service at SNAP can offer advice. No information on updates.
Contact SNAP Cymru Central Office 45 Penarth Road Cardiff, CF1 5DJ Tel: 029 2038 8776 Email: snapcym@aol.com Web: www.snapcymru.co.uk
N19: Transition in England and Wales - A guide for family members, by Contact a Family
Target Audience Families who care for children with any disability or need.
Content Factsheet on transition in England and Wales. Contains useful information on the process of transition and gives contact details of useful organisations.
Availability & Updates Available from Contact a Family. Downloadable from website. Latest version May 2003. Updated regularly.
Contact Contact a Family 209-211 City Road London, EC1V 1JN Tel: 020 7608 8700 Fax: 020 7608 8701 Minicom: 020 7608 8702 Helpline: 0808 808 3555 Email: info@cafamily.org.uk Web: www.cafamily.org.uk
Choices - housing and accommodation
N20: Room to Move - A book and video for parents of young people with learning disabilities making the transition from home to independent living.
Target Audience Parents of young people with learning disabilities leaving home, staff and managers working with families, young people leaving home.
Content A5, 100 page book and video. Looks at issues involved when young people with learning disabilities leave home. Includes initial discussions about leaving home, planning and timing the move, after the move and the long term. Helps to keep the young person at the centre of the decision- making process.
Availability & Updates Available from Pavilion Publishing. £45 for book and video. Produced in 2001.
Contact Joseph Rowntree Foundation (Alison Cowen) Pavilion Publishing (Brighton) Ltd The Ironworks Cheapside Brighton BN1 4GD Tel: 01273 623222 Fax: 01273 625526 Email: info@pavpub.com Web: www.pavpub.com
N21: Housing Options - Tools for planning
Target Audience Professionals who help with planning housing options.
Content A resource pack which includes the 'Your place to live' manual and video, 'Where I want to live' photocards and other Housing Options publications.
Availability & Updates Disseminated via workshops. £140 per delegate. Regularly updated via conference programme. Information also available on their website.
Contact Housing Options 78a High Street Witney Oxfordshire, OX28 6HL Tel: 0845 4561497 Email: enquiries@housingoptions.org.uk Web: www.housingoptions.org.uk
Feelings and emotions
N22: Meeting the emotional needs of young people with learning disabilities - A booklet for parents and carers, by Foundation for People with Learning Disabilities
Target Audience Parents and carers of young people with learning disabilities.
Content A 32 page booklet giving advice about how to help young people to be emotionally strong, including advice about the emotional aspects of transition planning.
Availability & Updates Available for £2 from the Foundation for People with Learning Disabilities. Written in 2003.
Contact Foundation for People with Learning Disabilities 83 Victoria Street, London, SW1H 0HW Tel: 020 7802 0300 Fax: 020 7802 0301 Web: www.learningdisabilities.org.uk
Feelings and emotions - sexuality
N23: Sex Education and sexuality for very special people: A sensory approach, by Catalyst Education
Target Audience Families and professional carers.
Content Covers topics such as growing up, adulthood, masturbation, menstruation and understanding gender. 147 pages.
Availability & Updates Available from Catalyst Education, £14. Written in 1997.
Contact Catalyst Education Resources Ltd. 1A Potters Cross, Wootton Bedfordshire, MK43 9JG Web: www.cerl.net/books/sexed.htm
N24: TalkingTogether about growing up - A workbook for parents of children with learning disabilities, by Family Planning Association
Target Audience Parents of children with learning difficulties.
Content Contains exercises to help parents introduce topics such as puberty, body parts, public and private behaviour, keeping safe and feelings and relationships.
Availability & Updates Available from fpa. Written in 1999 in an accessible style.
Contact Family Planning Association PO Box 1078, East Oxford DO Oxford, OX4 6JE Tel: 01865 719418 Web: www.fpa.org.uk
N25: Talking together about sex and relationships, by Family Planning Association
Target Audience Schools, parents and carers, Suitable for work with people aged 13 and above.
Content Follow-up to 'Talking together about growing up'.
Availability & Updates £14.99 from fpa. No information on updates.
Contact Family Planning Association PO Box 1078, East Oxford DO Oxford, OX4 6JE Tel: 01865 719418 Web: www.fpa.org.uk
Changes - girlfriends, boyfriends, sex and sexuality
N26: Sex Education and sexuality for very special people: A sensory approach by Catalyst Education
Target Audience Families and professional carers.
Content Covers topics such as growing up, adulthood, masturbation, menstruation and understanding gender. 147 pages.
Availability & Updates Available from Catalyst Education, £14. Written in 1997.
Contact Catalyst Education Resources Ltd. 1A Potters Cross, Wootton Bedfordshire, MK43 9JG Web: www.cerl.net/books/sexed.htm
N27: TalkingTogether about growing up - A workbook for parents of children with learning disabilities, by Family Planning Association
Target Audience Parents of children with learning difficulties.
Content Contains exercises to help parents introduce topics such as puberty, body parts, public and private behaviour, keeping safe and feelings and relationships.
Availability & Updates Available from fpa. Written in 1999 in an accessible style.
Contact Family Planning Association PO Box 1078, East Oxford DO Oxford, OX4 6JE Tel: 01865 719418 Web: www.fpa.org.uk
N28: Talking together about sex and relationships, Family Planning Association
Target Audience Schools, parents and carers, Suitable for work with people aged 13 and above.
Content Follow-up to 'Talking together about growing up'.
Availability & Updates £14.99 from fpa. No information on updates.
Contact Family Planning Association PO Box 1078, East Oxford DO Oxford, OX4 6JE Tel: 01865 719418 Web: www.fpa.org.uk
Service and policy development - transition planning
N29: A short guide to Transition Planning for schools, by SEN Regional Partnership (South West)
Target Audience Families and professionals.
Content It has sections on Who is the Guidance for? What is a Transition Plan? Who is Responsible for Transition Plans? What should be in the Transition Plan? What are the Core Principles of Transition Planning? The Statutory Framework, Additional Sources of Guidance. The Additional Sources of Guidance section is particularly useful and has links to other guidance and information packs including: Pathway to Transition pack and guidance (Plymouth HAZ and Connexions); Leaving School (a directory/pack); NE Regional Partnership Transition Planning CD Rom.
Availability & Updates Available from the SEN Regional Partnership website. No information on updates.
Contact SEN Regional Partnership (South West) Web: www.sw-special.co.uk
Service and policy development - transition process
N30: Learning disabilities and the family: The teenager with a severe disability, by Foundation for People with Learning Disabilities
Target Audience Parents, close family members and friends of teenagers with a severe learning disability.
Content 16 page booklet. Includes useful contacts. Uses quotes from parents to illustrate and explain the transition process. Includes a checklist and useful resources.
Availability & Updates Booklet is now out of print but is downloadable from FPLD website. Produced in 1998.
Contact Foundation for People with Learning Disabilities 83 Victoria Street London SW1H 0HW Tel: 020 7802 0300 Fax: 020 7802 0301 Web: www.learningdisabilities.org.uk
N31: Transition from school or college for young people with learning disabilities, by Foundation for People with Learning Disabilities
Target Audience Families and professionals.
Content Factsheet available from FPLD. Explains the transition process, lists useful organisations and publications. From the website you can also join a discussion forum and read other people's stories.
Availability & Updates Downloadable from FPLD website or write to the Foundation for People with Learning Disabilities. Page updated 19.11.03.
Contact Foundation for People with Learning Disabilities 83 Victoria Street London, SW1H 0HW Tel: 020 7802 0300 Fax: 020 7802 0301 Web: www.learningdisabilities.org.uk