COVID-19 resources

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COVID-19: Tips for housing sector on end of life care

Housing LIN

With the further escalation of coronavirus (COVID-19) in the UK, the lives of residents are at risk and those who are vulnerable may die of their current long-term condition. This briefing from Housing LIN sets out a number of tips for the housing sector on end of life care and signposts to a selection of useful links and further practical advice.

Last updated on hub: 02 April 2020

Covid-19: understanding inequalities in mental health during the pandemic

Centre for Mental Health

This briefing paper explores the mental health inequalities that are associated with the COVID-19 pandemic in the UK. It finds that the virus and the lockdown are putting greater pressure on groups and communities whose mental health was already poorer and more precarious. These include people living with mental health problems, whose access to services has been interrupted; people who live with both mental health problems and long term physical conditions that put them at greater risk of the virus; older adults who are both susceptible to the virus themselves and much more likely than others to lose partners and peers; women and children exposed to trauma and violence at home during lockdown; and people from the ethnic groups where the prevalence of COVID-19 has been highest and outcomes have been the worst, notably people from Black British, Black African, Bangladeshi and Pakistani backgrounds. The paper calls on the Government to take urgent action to address race inequality in mental health, including the urgent need for funding for organisations working in communities that have been affected most deeply by the pandemic. It calls for action to ensure people with mental health problems have access to food and medicine as well as continued financial safety-nets for those at greatest risk from the virus. And it calls for longer term action, including to build on the positive steps that have already been taken to prevent homelessness and improve the benefits system.

Last updated on hub: 29 June 2020

COVID-19: visiting nursing and residential care homes: summary for family and friend carers

Northern Ireland. Department of Health

Outlines the arrangements for visiting in nursing and residential care homes which apply in line with current regional surge level position (level 4 – high or rising level of transmission). This is subject to change depending on the prevalent rate of transmission and will be reviewed frequently. Local outbreaks of infection in care homes will require an additional specific local response and additional restrictions for visiting in line with Public Health Agency advice for management of the outbreak.

Last updated on hub: 20 October 2020

COVID-19: visitors’ protocol. CPA Briefing for care providers

Care Provider Alliance

This protocol provides a set of principles and top tips for developing visiting policies in residential settings - to ensure people using care and support have the opportunity to safely receive visitors during the COVID-19 pandemic, while minimising the risk of its introduction to, or spread within, the care setting. The protocol is primarily aimed at care settings which cater for older people, including people with dementia, such as residential and nursing homes. However, it will be of help for other care settings such as those supporting working age people with a range of vulnerabilities, including physical, sensory or learning disabilities. The protocol sets out the principles for considering how to allow visitors in care settings, recognising the importance of finding ways to ensure this is done in a risk-based, balanced way. It examines the types of visits that may be considered, the policies and procedures that are needed, visitor restrictions and ability to suspend visiting, effective communication, and learning as the situation develops. The protocol includes a set of rights and responsibilities for both care providers and visitors which put the welfare and wellbeing of residents / people receiving care at the heart of the approach to developing their visiting policies.

Last updated on hub: 24 June 2020

COVID-19: what people are telling us: a summary, April-June 2020

Healthwatch England

This report provides NHS and social care leaders with a summary of key issues the public faced because of the COVID-19 pandemic, and how this affected their experiences using health and social care. The feedback covers primary care; secondary and urgent care; mental health services; social care; and community and other services – including patient transport, equipment services and charitable or voluntary services such as the National NHS Responder Scheme. This report covers the period April–June 2020 and is informed by 19,717 people’s experiences of care. In relation to social care, people raised concerns about access to testing and PPE in care home settings, as well as for home care workers and informal carers. People’s feedback highlighted that while family and friends were unable to visit their loved ones in care homes, timely and regular communication from care home staff really mattered – especially surrounding discussions about advance care planning or if the resident was approaching the end of their life. In addition, families and carers have faced huge challenges due to the closure of respite and day centre services during this time. The report finds that factors such as loneliness and social isolation, bereavement, employment and financial stress, and anxiety about both COVID-19 and other health conditions have all had a negative impact. There has been an increase in positive experiences of urgent and emergency care services – with the amount of positive feedback increasing to 45%, compared to 36% last quarter. Only 22% of respondents reported positive experience of social care services while 46% said they had a negative experience.

Last updated on hub: 10 September 2020

COVID-19:In conversation with Susie Finlayson and Sian Lockwood

Social Care Institute for Excellence

This podcast features SCIE’s Deputy Chief Executive, Ewan King, in conversation with Sian Lockwood, Chief Executive at Community Catalysts; and Susie Finlayson, Development Manager for Power.

Last updated on hub: 23 June 2020

COVID-19-related fear and stress among individuals who experienced child abuse: the mediating effect of complex posttraumatic stress disorder

Child Abuse and Neglect

Background: The COVID-19 pandemic exposes individuals not only to health-related risks, but also to psychosocial fear and acute stress. Previous studies reveal that individuals who experienced child abuse (CA), especially those who suffer from complex posttraumatic stress disorder (CPTSD), are at a higher risk of reacting with fear and stress when faced with stressful life-events. Objective: To test whether exposure to CA is implicated in a higher risk of COVID-19-related fear and acute stress, and whether CPTSD intervenes in such processes. Participants and settings: A convenience sample of 837 adults participated in the study during the first peak of COVID-19 in Israel. Methods: Participants completed self-report questionnaires, assessing child physical, sexual and emotional abuse, CPTSD (ITQ), COVID-19-related acute stress disorder (COVID-19 ASD; ASDS) and fear of COVID-19. Results: Bivariate analyses showed that participants who experienced CA were higher than participants who did not experience CA in COVID-19 ASD (p = .032), but not in fear of COVID-19 (p = .65). Mediation analyses demonstrated two significant paths: in the first, CA was associated with elevated fear of COVID-19 (effect = .061, .059; p < 0.05) and COVID-19 ASD (effect = .14, .084; p < 0.05) through the mediation of CPTSD; in the second path, when controlling for the mediation of CPTSD, CA was associated with reduced fear of COVID-19 (effect = −.15; p = 0.001), and COVID-19 ASD (effect = −.12; p = 0.024). Conclusions: The findings reveal a complex pattern, indicating that CPTSD may be a risk factor for elevated levels of COVID-19 distress among individuals who experienced CA. However, some CA survivors may express reduced COVID-19 distress.

Last updated on hub: 21 January 2021

COVID-19-related social support service closures and mental well-being in older adults and those affected by dementia: a UK longitudinal survey

BMJ Open

Background: The COVID-19 pandemic has had a major impact on delivery of social support services. This might be expected to particularly affect older adults and people living with dementia (PLWD), and to reduce their well-being. Aims: To explore how social support service use by older adults, carers and PLWD, and their mental well-being changed over the first 3 months since the pandemic outbreak. Methods: Unpaid dementia carers, PLWD and older adults took part in a longitudinal online or telephone survey collected between April and May 2020, and at two subsequent timepoints 6 and 12 weeks after baseline. Participants were asked about their social support service usage in a typical week prior to the pandemic (at baseline), and in the past week at each of the three timepoints. They also completed measures of levels of depression, anxiety and mental well-being. Results: 377 participants had complete data at all three timepoints. Social support service usage dropped shortly after lockdown measures were imposed at timepoint 1 (T1), to then increase again by T3. The access to paid care was least affected by COVID-19. Cases of anxiety dropped significantly across the study period, while cases of depression rose. Well-being increased significantly for older adults and PLWD from T1 to T3. Conclusions: Access to social support services has been significantly affected by the pandemic, which is starting to recover slowly. With mental well-being differently affected across groups, support needs to be put in place to maintain better well-being across those vulnerable groups during the ongoing pandemic.

Last updated on hub: 21 January 2021

CQC publishes data on deaths in care settings broken down by ethnicity

Care Quality Commission

Data on the impact of coronavirus (COVID-19) on different ethnic groups in care settings. This data – which includes death notifications in adult social care settings from 10 April -15 May 2020 (and the equivalent period in 2019) – indicates a disproportionate number of deaths among people from BME groups. The data shows that while the vast majority of all reported deaths from adult social care settings were White people the proportion of deaths in all adult social care services due to confirmed or suspected COVID-19 was higher for Black (49%) and Asian (42%) people compared to White people (41%) and people from mixed or multiple ethnic groups (41%).

Last updated on hub: 06 July 2020

CQC publishes data on deaths of people with a learning disability

Care Quality Commission

Data on the impact of coronavirus (COVID-19) on people with a learning disability, some of whom may also be autistic, and how the number of deaths during this period compares to the number of deaths last year. This data shows that between 10 April and 15 May this year, 386 people with a learning disability, some of whom may also be autistic, died who were receiving care from services which provide support for people with a learning disability and/or autism. This is a 134% increase in the number of death notifications this year, compared to the same period last year. [Published 2 June 2020. Updated 5 June 2020]

Last updated on hub: 06 July 2020