COVID-19 resources on dementia

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Tips on visiting care home residents as lockdown eases

carehome.co.uk

Brings together guidance and advice on how the public can visit care home residents as the COVID-19 lockdown measures ease. The resource covers: government guidelines to care home visits for England, Wales, Scotland and Northern Ireland; how care homes enable visitors; what to do before visiting a care home; what to expect from the first visit after lockdown; and visiting a relative living with dementia in a care home.

Last updated on hub: 27 July 2020

Lockdown’s side effect: mental health deterioration of people affected by dementia, with third ‘giving up’

Alzheimer's Society

Sets out findings from a survey of around 2,000 people affected by dementia revealing the devastating impact coronavirus has had on their mental health, with a third living with dementia reporting apathy or a sense of ‘giving up’. Nearly half of respondents said that lockdown has had a ‘negative impact’ on their mental health. Around half of unpaid carers also reported that loved ones with the condition have experienced stress, anxiety or depression.

Last updated on hub: 21 July 2020

Providing person-centred support for residents living with dementia who need to be isolated in care homes during the COVID-19 crisis

Association for Dementia Studies, University of Worcester

This information sheet supports care homes catering for people living with dementia during the COVID-19 pandemic. The document covers a range of strategies to help a person living with dementia understand the COVID-19 situation; to create an inviting isolation space; to help occupy the person in an isolation space; to use the environment to encourage isolation; to meet people’s need for human contact; and to encourage a person to comply with infection control requirements. It brings together current best practice, setting out general advice only. Each resident should be assessed on an ongoing and individual basis to find the best response and the latest national sector guidance should be followed.

Last updated on hub: 24 June 2020

Caring safely at home

Social Care Institute for Excellence

SCIE's video-based resource designed for unpaid/informal carers. You may be caring for family members, friends or neighbours at home.

Last updated on hub: 11 June 2020

Patients living with dementia who ‘walk with purpose or intent’ in the COVID-19 crisis

NIHR Applied Research Collaboration (ARC) West

This evidence summary looks at how to manage care home residents with dementia who ‘walk with purpose or intent’ such that infection prevention measures are not breached during an epidemic such as COVID-19. It identified clear guidance from the British Geriatric Society (BGS) on the approach of care home staff for residents with dementia who ‘walk with purpose or intent’ during the COVID 19 crisis. The guidance focuses on isolation of suspected cases and behavioural approach to ameliorating potential unsafe activities of residents. The British Psychological Society’s Faculty of the Psychology of Older People also describes primary preventative and secondary reactive behavioural approaches that can be used to care for residents during the COVID 19 outbreak.

Last updated on hub: 10 June 2020

Supporting care home residents living with dementia during COVID-19: episode 7

My Home Life England

'Conversations with Care Homes' is a series by My Home Life England (MHLE). This episode focuses on how best to support care home residents living with dementia during COVID-19. Stories, tips, methods are shared and signposting for how best to support residents living with dementia at this difficult time. Video posted 2 June, 2020.

Last updated on hub: 09 June 2020

Tide COVID-19 resources hub

Life Story Network CIC

Includes a range of information and activities for carers and former carers to connect, and keep well and informed. The hub is organised by these sections: activities for carers and people with dementia; Black, Asian, and minority ethnic (BAME) resources; care homes and social care; caring for yourself and wellbeing, grief and bereavement; health; national advice, support and helplines (UK, England, Northern Ireland, Scotland, Wales) and UK legislation and guidance.

Last updated on hub: 05 June 2020

Living grief and bereavement: a booklet for anyone working with carers of people with dementia

This booklet aims to give professionals an understanding of the feelings of grief and bereavement that those caring for people with dementia can experience. It shows that carers can experience complex feelings of grief when the person they care for is still alive, and that these feelings can last long after the person dies. The booklet draws on the views of over 100 carers across the UK who participated in an online survey and focus groups. Carers views covered feelings of loss and grief, a loss of their own identity, their experiences of support, and advice for professional.

Last updated on hub: 04 June 2020

Supporting a person with dementia following bereavement during the COVID-19 pandemic

Northern Health and Social Care Trust

A guide providing information to help those supporting people with dementia who have experienced a bereavement during the COVID-19 pandemic. It contains suggestions that have been used in palliative care which have been drawn from research and from experience of talking to people with dementia about death and dying.

Last updated on hub: 04 June 2020

Activities delivered at home by family carers to maintain cognitive function in people with dementia socially isolating during COVID-19: evidence for non-technology based activities / interventions

Centre for Evidence Based Medicine

A rapid review to identify evidence for which non-technology based activities that can be delivered at home by family carers are effective in maintaining cognitive function in people with dementia who are socially isolating during COVID-19. These interventions can include reminiscence therapy, cognitive stimulation therapy, music-based interventions, art therapy or meaningful activities. The review found very few studies where family carers were trained or supported to deliver an intervention within the home environment. However, it identified a small body of evidence to suggest that activities delivered at home by family carers may have some positive effects on cognition and mood. The evidence suggests that engaging people with dementia in activities that they find enjoyable or those that link to past work/hobbies can be helpful in giving a sense of purpose and meaning during a time of isolation. Non-technology based interventions may have some practical advantages for those currently isolating at home since they are inexpensive and do not require extensive training.

Last updated on hub: 01 June 2020