Barriers to social care and carers’ needs assessments in dementia
A study examining barriers faced by people with dementia and unpaid carers in accessing social care and carers’ needs assessments in England.
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A qualitative study examining how the digitalisation of social care affects older unpaid carers, focusing on choice, coercion and exclusion.
Key messages
Policy implications
Gaps
Commentary
This study shows how the digitalisation of social care reshapes everyday caring work for older unpaid carers. While digital tools were sometimes seen as useful, many carers described a loss of choice as non-digital routes were reduced or removed.
Affordability and skills gaps emerged as central barriers. For carers already managing significant responsibilities, the need to pay for devices or data and to develop digital confidence added pressure rather than relief. These constraints meant that digital systems often worked better for those with existing resources, leaving others struggling to engage.
The findings also highlight the importance of how digital change is implemented. Where carers were not involved in design decisions, digital services were more likely to feel imposed and poorly aligned with real-world caring contexts. In contrast, co-produced approaches were seen as more responsive and respectful of carers’ needs.
Overall, the study illustrates that digital social care can either support or undermine access depending on the choices made around funding, design and delivery. Retaining offline options and providing practical support for connectivity and skills are not transitional measures, but essential conditions for fair and workable digital care.
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