A best interests decision making e-learning course. This session explores ‘best interests’, what it means for disabled people and how best interest decisions are made for disabled people who lack capacity.

An e-learning course on advance care planning. This session discusses Advance Care Planning and decision-making with disabled people of all ages, including using the framework and elements of the Mental Capacity Act.

Findings from a study to gather information from people who have experienced Do Not Attempt Resuscitation (DNAR) decision making, both since and prior to the Coronavirus pandemic. The report shows a worrying picture around the rights of involvement in care and treatment decisions, including DNARs. The evidence depicts serious issues of discrimination related to disability and age, and the intersection between the two, as well as other factors. Coronavirus has shone a spotlight on this, and some reported an increase in worrying DNAR decisions; but none of this is new, these problems are ongoing. The report’s key findings are: 100% of people involved said there needs to be more easily accessible information about human rights; almost 60% of people involved said they had received no information about their right to life during Coronavirus; 65% of people involved said that they (or a person they care for/about) had a DNAR order put on your medical file. 21% said they didn’t know; of those who had seen a DNAR order put in place almost half (47%) were not related to end-of-life care; less than a third of people (29%) who were involved in DNAR decision-making felt fully listened to, most felt listened to a bit (46%), and 25% felt not listened to; 91% of people involved felt that discrimination was an issue in the DNAR decisions they’d experienced.

CDC’s case law digest service provides essential updates on the latest judicial decisions affecting disabled children and young people and those with SEN.

This webinar explores what it means to get the balance right between protecting public health and respecting the human rights of vulnerable people in the context of COVID-19 pandemic.