Results for 'user views'
Results 21 - 27 of 27
GREEN Geraldine, LAKEY Louise, ALZHEIMER'S SOCIETY
The National Dementia Declaration for England (2010) identified that people with dementia want to live in communities that give them choice and control over their lives, provide services and support designed around their needs, and to feel valued and understood, and part of family, community and civic life. This report provides evidence of dementia-friendly communities in England, Wales and Northern Ireland from the perspective of people affected by dementia. It uses the results of a survey of people with dementia (510 respondents) distributed by Alzheimer’s Society staff and other networks in Autumn 2012 (referred to as the DFCsurvey) to explore the barriers that people face in their community, how they would like to be engaged in their local area, and the support they need to enable them to do so. Overall, the report aims to provide guidance to areas that are looking to become dementia-friendly, and to provide extra evidence for those already committed to becoming dementia-friendly. Evidence from people with dementia and their carers is collated alongside examples of projects that are making a difference for people with dementia. This information is used both to provide a definition of a dementia-friendly community, and to suggest 10 key areas of focus for communities to consider in working to become dementia friendly. These 10 key areas are: challenge stigma and build understanding; accessible community activities; acknowledge potential; ensure an early diagnosis; practical support to enable engagement in community life; community-based solutions; consistent and reliable travel options; easy to navigate environments; and respectful and responsive businesses and services. While there are some excellent examples of communities that are adapting themselves to the needs required by dementia, many people with dementia do not feel supported and a part of their local area; and are not able to take part in activities that they enjoyed before they developed the condition. Loneliness, feeling isolated and lack of confidence were identified as major barriers.
UNIVERSITY OF YORK. Social Policy Research Unit
This report provides final findings of a study conducted with ten participating councils to investigate the benefits of homecare re-ablement. The study aimed to identify features of an effective and cost efficient services; maximise outcome and duration of benefits; and to understand and reduce the demands on other formal care, including other social services. The study comprised of three groups of councils: intervention sites which were enablement staff led; intervention sites with mixed staff teams; and comparison sites where service users had not undergone a phase of home care re-ablement. The previous interim study reflected on initial findings from the intervention sites. This report also adds findings from the comparison sites and long term impact from the follow up review stage. Main findings are discussed in the areas of assessment arrangements; discharge and onward referral arrangements; key features of re-ablement services; team skill mix; staff commitment, attitude, knowledge and skill; service users and carer views; and a strong vision of the service.
WARD Cally, COOPER Vivien
Purpose: The purpose of this article is to provide a perspective from family carers on the promotion of independence and the prevention of avoidable dependency.
Design/methodology/approach: Narrative review and discussion.
Findings: Family carers frequently experience their own or their relatives’ needs being met only when they have reached crisis point. A shift to a more preventive approach, delivered in a personalised and family-centred manner, could transform the experiences of people with learning disabilities and their families.
Originality/value: Attention is drawn to the importance of strengthening the case for a preventive approach and the role of co-ordinated and strategic leadership in its delivery.
LEESE Daniela, SMITHIES Lynda, GREEN Julie
This article aims to identify service users and nurses perspectives on recovery -focused practice through themes in the literature. Seven studies and two reflective articles were selected for consideration. Three common themes emerged as essential nursing characteristics needed for recovery-focused practice: hope, person-centred care and consideration of service users' perspective. Recommendations on how practice could be improved are suggested from these themes. Key points include involving family members in care, involving service users in decisions, and spending time with service users to aid recovery.
TRAPPES-LOMAX Tessa, HAWTON Annie
Effective reablement is dependent on service users' co-operation and motivation. It therefore needs to be highly responsive to their needs and views. This study offers specific user views about their experiences in different settings and at different stages of reablement, together with their ideas for how it might work better. The study describes the experiences of 42 older people in rehabilitation services in community hospitals and local authority short-term residential units followed by “usual care” services at home. It is based on semi-structured face-to-face interviews in 2002/3, from East and Mid Devon, England. Findings revealed four main themes: the complexity of rehabilitative need; the influence of the setting; the role of the staff; and the availability of reablement support back at home. The authors concluded that the findings demonstrate changing rehabilitative needs along the care pathway, with implications for commissioners and providers of reablement services.
In this article, the author reviews findings in dementia care on interventions and on quality of life with the aim of identifying factors associated with quality of life which can form the basis for interventions enhancing quality of life for people with dementia. The article looks at evaluation of well-being and quality of life in people with dementia, including the importance of "hearing the voice of people with dementia", and the key factors predicting quality of life in people with dementia. Drawing on this, it suggests potential strategies and interventions for improving quality of life in people with dementia: improve mood, maintain health, hopeful staff attitudes, reduce use of anti-psychotic medication, enhance relationship with carer, encourage family involvement, cognitive stimulation and cognitive rehabilitation, and creative activities and approaches.
HEMINGWAY Ann, JACK Eleanor
A UK charity established a network of 70 friendship clubs in the south of England, facilitated by volunteers, with the aim of promoting well-being for older people. The charity provides venues and transport for participants to meet and enjoy activities locally every week for 2 hours. This article reports on a 3 year research project exploring the impacts of the intervention, using qualitative research methods and including participant observation and individual and focus group interviews. The study was based on 10 of the friendship clubs and collected information from 82 members and 18 volunteers. The article describes the intervention and the study methodology. It presents the results, with illustrative quotations from participants, covering views on the risk of becoming isolated, feeling isolated, and friendship and support. It identifies additional factors that can predispose an individual to become socially isolated, including environment and safety fears, fear of falling, and loss of confidence, and notes that even when living with their families older people can still feel socially isolated. It reports that club members and volunteers viewed themselves as assets for each other, offering support, advice and friendship, and that, overall, the perceived benefits for attendees of attending the friendship clubs fell into 3 key areas: improved well-being, social relations, and mental and physical health.
Results 21 - 27 of 27