The participation of adult service users, including older people, in developing social care

Culture - Action points

This morning [support worker] gave me cup of tea, give me breakfast. I say, 'Hello’, no [reply], nothing, did not speak to me and did not sit next to me, sat a couple of seats along…I don’t feel like I’m in control of my own life. (Service user)

I know that sometimes I can come across as the 'angry disabled person’ which confirms all their negative stereotyping but is usually more about me feeling very vulnerable and confused because my access needs are ignored. (Service user)

It is about being empowered. It is about recognizing that [organisations] understand and have acted from a social model understanding. It is important to listen to what disabled people say. It should be an information exchange. Need to be honest, for example, 'this is what we hope to achieve’…..’Your views will be fed to [practitioners] in such and such manner.’ (Service user)

Whoever is running it must report back to the service users. They don’t listen. All they say [is that] they are not responsible for whatever it is you are talking about. It is never their fault. You are forever talking to the wrong person. They always have excuses. (Service user)

Partnership needs to be there, not workers hijacking ideas. [We] need to be equal partners. (Service user)