Supporting people with dementia in different types of housing
People with dementia can live either independently or with support in a range of different housing types. The options covered in this resource include:
- staying in their own home
- sheltered housing with domiciliary care
- extra care housing.
Aids, adaptations and assistive technology can help people with dementia to live better in all forms of housing and should be considered before making a decision to move home.
Sheltered housing and extra care housing are two options that might be considered if a person with dementia (and their carer) is finding it difficult to stay in their own home. Extra care housing usually provides on-site care and support and a range of facilities such as a café. Some extra care housing schemes specialise in supporting people living with dementia.
People should have access to information and advice to make the right choice for them at the right time.
Directories and toolkits Open
EAC FirstStop Directory of housing and care options
A directory of housing and care options for people living with dementia, use the free text search for search for ‘dementia’. The directory also includes a section for providers.
EAC FirstStop Directory of Home Services
Information on local services that can help older people live safely and independently at home. Includes the categories of dementia, aids and equipment, home maintenance, safety and security.
Dementia Care information pages include practical advice and information people living with dementia and those that care for them.
Extra Care Housing and Dementia Commissioning Checklist - Housing LIN (2011) - Produced for the Department of Health National Dementia Strategy Implementation Group. A checklist to help commissioners develop extra care housing which meets the needs of people with dementia and their families.
Extra care housing: a focus on dementia – Housing LIN (2018)
Three ‘viewpoint’ papers on extra care housing for people with dementia and how provision can be improved. The papers are based on a Doctoral Research study from Katey Twyford, Housing LIN Associate.
Beyond The Front Door: what 'home' means to people with dementia and their carers – Life Story Network (2016)
A project to examine the importance of ‘home’ in relation to the sense of identity and wellbeing for people living with dementia. This project aimed to develop awareness amongst professionals, particularly housing support staff, in order to support the people with dementia better when deciding whether to move home and during the actual transition.
Gearing up: housing associations' responses to tenants with dementia from black and minority ethnic backgrounds – Age UK (2015)
A study into how social housing providers providing sheltered housing and extra-care support meet the needs of people with dementia from black and minority ethnic groups.
An independent review of Shared Lives for older people and people living with dementia - PPL (2018)
This review assesses Shared Lives respite care and day care for older people and people with dementia. It found that Shared Lives arrangements were able to reduce social isolation experience by carers and resulted in increased independence, wellbeing and choice for service users.
Shared Lives and Dementia - Shared Lives South West and Innovations in Dementia (2013)
The report of a programme to assesses how Shared Lives schemes could support people with dementia and their families alternative to residential care or for the provision of short-break or day respite services.
Provision of social care in extra care housing: the ECHO study - School for Social Care Research (2018)
Summary findings from a study to explore how care is delivered within Extra Care Housing schemes, including within one specialist dementia facility.
Individuals with dementia living in extra care housing: an initial exploration of the practicalities and possibilities – Housing LIN (2016)
Draws together information on how organisations support people with dementia to move into or to stay within an extra care scheme.
Advantages and disadvantages of different models of housing with care schemes for people living with dementia: report of a 2015 Housing and Dementia Research Consortium (HDRC) annual workshop – University of Worcester - Association for Dementia Studies (2015)
Money matters: reviews of cost-effective initiatives – Oxford Brookes University / Institute of Public Care (2011)
Includes a detailed analysis of the cost-effectiveness of extra care housing for people living with dementia.
‘Extra care’ housing and people with dementia
What do we know about what works regarding the built and social environment, and the provision of care and support? A scoping review of the literature 1998-2008
Extra care: viable for couples living with dementia?, Housing, Care and Support (2017).
A small scale study exploring the perceived barriers and facilitators of a relocation to extra care housing, from the perspective of people living with dementia, and their care partners. The benefits of extra care were identified as the opportunity for couples to remain living together for longer and a reduction in the strain experienced by the care partners.
Case studies Open
Housing and mental health: working together in the Midlands to tackle mental health issues and dementia – Midland Heart (2016)
Includes the example of Nehemiah UCHA Retirement Living Service which supports black and minority ethnic older people, including those with dementia, to live independently.
A case study of ‘Henry Court’ from Nehemiah Housing Association Nehemiah Housing Association provides housing and wellbeing services for the multicultural African Caribbean, Asian, Irish and European communities within the West Midlands. This case study on the National Housing Federation website shows how Nehemiah Housing supported one of their residents who was diagnosed with dementia.
Innovations in dementia – In Control / Helen Sanderson Associates (2016)
This publication explores good practice in housing support and includes three case studies of extra care housing for people living with dementia. It also looks at Shared Lives arrangements can be used to provide short break care or day provision (p.20).
Shore Green extra care housing, in South Manchester. Owned and managed by Irwell Valley Housing Association, Shore Green provides tailored care and support to residents with memory loss and dementia. Self-contained flats and bungalows, means that couples can remain together when one or both is diagnosed with dementia
- Irwellvalley media release (May 2017)
Putting dementia into the heart of extra care housing in Wales: a case study from Mold – Housing LIN (2014)
This case study focuses on the benefits that effective partnership working brings to new extra care schemes. It looks at what key stakeholders offer to the process and takes learning from each stage in the development process, including designing for inclusion with people with dementia in mind.
Living with dementia in extra care housing
Professionals and practitioners share the ways in which an Extra Care Housing setting can improve the quality of life of both people living with dementia and their carers, and can even help manage the condition.
Margery Girling House, Felixstowe - Integrating dementia needs
A replacement for a sheltered housing scheme which now meets a range of needs including those of people with dementia in an integrated way.
Stanton Lodge, Swindon
Extra care housing enabling couples, where one has dementia, to stay together, living in a supported environment but with the independence of their own purchased flat.
ECHO research project
A collaborative venture between the Housing LIN and researchers from the universities of Bristol, Worcester and Kent. The project looked at the provision of extra care housing schemes for older people, including older people living with dementia.
Listening to residents in extra care housing: findings from the ECHO research project
Influencing policy and operations: outcomes from the ECHO research project