Impact of having a carer on health and social care use

A study examining how having a registered carer affects adult health and social care utilisation and costs across care settings.

Key statistics

  • adults with a registered carer had 27% higher combined health and social care costs than those without a carer
  • social care accounted for 39% of the cost difference between people with and without carers.

Key messages

  • having a carer is associated with higher use of health and social care services across all settings
  • carers often act as advocates, supporting access rather than substituting formal care
  • assumptions that carers reduce demand on services are challenged by the findings
  • people without carers may face barriers to accessing services, raising equity concerns
  • the study highlights variation in carer roles, though available data could not fully differentiate these differences.

Policy implications

  • policies that assume carers reduce reliance on formal care may need to be reconsidered
  • carers could be more effectively supported through training and inclusion within formal care systems
  • services may need to identify and support people without carers who are at risk of unmet need
  • care coordination and navigation support could help address access gaps.

Gaps

  • limited differentiation between types and intensity of caring roles
  • reliance on primary care records to identify carers may undercount caring relationships
  • lack of longitudinal analysis to assess longer-term impacts on service use and outcomes.

Commentary
This study challenges common assumptions about the role of informal (unpaid) carers in health and social care systems. Rather than reducing service use, the presence of a carer is associated with higher costs and increased access across care settings, particularly within social care.

The findings suggest that carers play an enabling role, acting as advocates and coordinators who help individuals navigate complex systems and access support. In this sense, carers often address unmet needs rather than replacing professional care.

From a care equity perspective, the study raises concerns about individuals without carers. Lower service use among this group may reflect barriers to access rather than lower need, pointing to potential inequities in how support is reached and received.

The evidence highlights the need for policy approaches that recognise carers as part of the wider care system while also addressing gaps for people without informal support. Better integration, support and identification of caring relationships may help reduce inequities in access, experience and outcomes.

The economic impact of digital inclusion in the UK

Economic analysis examining the costs and benefits of improving digital skills and reducing digital exclusion in the UK, including implications for public services such as health and care.

Key statistics

  • around 11.5 million people in the UK lacked basic digital skills in 2021, falling from 12.4 million in 2019
  • without intervention, 5.8 million people may remain digitally excluded by 2032
  • around 508,000 people per year would require digital skills training to achieve full inclusion by 2032
  • every £1 invested in digital skills training is estimated to generate £9.48 in economic benefits
  • digital inclusion could generate around £899 million in NHS savings between 2023 and 2032

Key messages

  • digital skills are increasingly essential for participation in everyday life, employment and access to services
  • large numbers of people remain digitally excluded, particularly older adults and those with lower skills levels
  • improving digital inclusion can generate economic and public service benefits
  • digital skills support programmes are required to reach people who are not yet online
  • digital inclusion requires coordinated investment in skills, devices and connectivity

Policy implications

  • sustained national investment in digital skills training is needed
  • programmes should target groups most likely to remain excluded, including older adults
  • digital inclusion strategies may reduce pressure on public services
  • digital skills should be treated as core infrastructure supporting access to services

Gaps

  • the report focuses mainly on economic modelling rather than direct health or social care outcomes
  • there is limited analysis of how digital inclusion programmes affect different groups
  • behavioural impacts on service use are assumed rather than directly measured
  • more research is needed on links between digital inclusion and care access

Commentary
This report provides an economic assessment of digital inclusion in the UK, focusing on the potential benefits of improving digital skills across the population. The analysis frames digital inclusion as a key component of economic participation, with implications for productivity, employment and the use of public services.

The findings suggest that improving digital skills could also generate savings for the NHS, partly through increased use of online services and reduced demand for in-person appointments. This reflects the growing role of digital channels in accessing health information, services and administrative processes.

From a care equity perspective, the report highlights the risk that digitalisation of services may disadvantage people without access to digital skills, devices or connectivity. Older adults and individuals with lower digital literacy are projected to make up a significant proportion of those who remain digitally excluded in the future. Without targeted support, these groups may face increasing barriers to accessing health and social care services that are delivered or coordinated through digital systems.

Overall, the analysis reinforces the argument that digital inclusion should be treated as a core public infrastructure issue. Investments in digital skills, connectivity and support services may help reduce exclusion from digital health and care services while improving the efficiency of public service delivery.

Socioeconomic disadvantage and self-reported health

Analysis examining how socioeconomic disadvantage affects transitions from good health to poorer health among the working-age population in England and Wales between 2011 and 2021.

Key messages

  • Good health underpins our ability to work and lead fulfilling lives. Yet the UK faces a growing working-age health challenge and widening health inequalities.
  • between 2011 and 2021, 18% of working-age people living in the most deprived areas moved from good health to poorer health, compared with 13% overall.
  • working-age adults living in the most deprived areas faced at least a 43% higher risk of no longer reporting good health than those in the least deprived areas, after accounting for demographic and socioeconomic differences.
  • among young adults aged 20-24 years in 2011, women in the most deprived areas had a 72% higher risk of transitioning out of good health by 2021 (70% higher for men).
  • unemployment and economic inactivity were strongly associated with deteriorating health: people unemployed but seeking work in 2011 had a 67% (women) and 82% (men) higher likelihood of no longer reporting good health compared with those in employment.
  • housing tenure also mattered: people living in private rented housing had a 42% (women) and 34% (men) higher likelihood of no longer reporting good health compared with those living in owned housing; the risk was even higher in social-rented housing.

Policy implications

  • policy responses should prioritise preventative approaches that support working-age health, particularly through employment and labour market participation.
  • improving housing quality, affordability and security may help reduce the risk of deteriorating health among disadvantaged groups.

Gaps

  • broader financial factors such as income dynamics, debt or wealth are not examined directly in the modelling.

Commentary
This analysis provides large-scale evidence linking socioeconomic disadvantage with deterioration in self-reported health among the working-age population. Using linked census data from 2011 and 2021, it demonstrates that people living in the most deprived areas are significantly more likely to move from good health to poorer health over time. The findings highlight how health outcomes are shaped not only by individual characteristics but also by structural socioeconomic conditions such as employment status and housing tenure.

The report identifies employment and housing as two of the most significant factors associated with declining health. Individuals who were unemployed, economically inactive or living in rented housing in 2011 were substantially more likely to report poorer health a decade later. These patterns suggest that economic security and stable housing conditions play a critical role in maintaining good health across the working-age population.

From a care equity perspective, the findings demonstrate how financial and socioeconomic disadvantage contributes to unequal health trajectories across the life course. People in deprived areas face a greater risk of losing good health earlier in life, which may reduce their ability to remain in employment and increase their need for health and social care support. Without policy interventions addressing the wider determinants of health, these structural disadvantages risk reinforcing long-term inequities in health, employment and care outcomes.

Personalisation in ethnic minority communities within UK adult social care

A systematic literature review examining how ethnic minority communities experience personalisation in UK adult social care, including barriers to uptake and factors that influence access to culturally appropriate services.

Key messages

  • personalisation in adult social care aims to increase choice and control through mechanisms such as direct payments, personal budgets and individual service funds
  • a systematic review of 45 studies found ethnic minority communities are under-represented among users of personalised care options despite potential benefits
  • people from ethnic minority communities may value personalisation because it allows them to arrange culturally appropriate care, including employing personal assistants from similar cultural or linguistic backgrounds
  • major barriers to uptake include lack of accessible information about personalisation, language barriers and difficulty navigating complex social care systems
  • cultural assumptions in mainstream services and limited availability of culturally appropriate providers can restrict meaningful choice and control
  • community and voluntary organisations often act as trusted intermediaries that help people understand and access personalised care, but these organisations have faced funding pressures

Policy implications

  • improving awareness of personalisation among ethnic minority communities requires accessible information in multiple languages and formats
  • social care providers and commissioners may need to develop culturally competent services and expand the availability of culturally appropriate care options
  • supporting community and voluntary sector organisations could help bridge gaps between communities and mainstream social care systems
  • recruitment and training strategies may need to focus on building a more diverse and culturally aware care workforce
  • improved monitoring of service uptake by ethnicity could help identify inequities and inform commissioning decisions

Gaps

  • there is limited robust quantitative data on the uptake and outcomes of personalisation among racially minoritised communities
  • much of the existing evidence base consists of qualitative studies, expert commentary and descriptive research
  • little research explores the perspectives of front-line care workers or personal assistants working with ethnic minority people who draw on care and support
  • further research is needed to understand how personalisation policies affect outcomes for different ethnic and cultural groups

Commentary
This systematic review synthesises evidence on how ethnic minority communities experience personalisation within UK adult social care. Personalisation policies are intended to increase choice and control over care through mechanisms such as direct payments and personal budgets.

The evidence suggests that personalisation can support culturally appropriate care. People may use personal budgets to employ personal assistants who understand their language, culture or religious practices, which can improve comfort and communication. In theory, this flexibility could improve access to services that align with people’s preferences and cultural needs.

However, multiple barriers limit the practical impact of personalisation for ethnic minority communities. Many studies report limited awareness of available options, difficulty navigating complex systems and inadequate information about entitlements. Language barriers and cultural misunderstandings can further reduce engagement with services.

From a care equity perspective, the review highlights how structural features of the social care system may unintentionally reinforce existing inequalities. When culturally appropriate providers are scarce or information about services is inaccessible, the promise of “choice and control” becomes difficult to realise in practice.

The findings also emphasise the role of community and voluntary organisations as trusted intermediaries that help individuals understand and access personalised care. However, funding pressures affecting these organisations may reduce their ability to support communities who already face barriers to mainstream services.

Overall, the review suggests that personalisation policies alone are unlikely to reduce inequities in adult social care. Improving equity will likely require culturally competent service design, stronger community engagement and better monitoring of access and outcomes across different population groups.

Disability, caring responsibilities and financial hardship in low-to-middle income households

Research examining how disability and unpaid caring responsibilities affect living standards, employment and financial security among low-to-middle income households in the UK.

Key messages

  • around one-third of adults in low-to-middle income families are disabled, a carer, or both
  • families that include both a disabled person and a carer face significantly higher rates of material deprivation than families without these circumstances
  • income levels are lower in households that include a disabled person or both a disabled person and a carer, even after controlling for demographic characteristics
  • disabilities and caring responsibilities can limit participation in paid employment, including reducing working hours or preventing work altogether
  • many carers report financial strain linked to the design of Carer’s Allowance, including strict earnings limits and administrative complexity
  • public spending on support services for unpaid carers has fallen substantially, with expenditure on carer support in England falling by around one-third since 2014-15

Policy implications

  • reforms to the social security system may be required to better support households with disabilities and caring responsibilities
  • Carer’s Allowance could be redesigned to remove sharp earnings thresholds and reduce administrative burdens for carers
  • employment policies should better support disabled workers and carers who want to remain in or return to work
  • restoring funding for support services for unpaid carers may help reduce financial pressures and improve wellbeing
  • broader policy responses may need to consider the interaction between disability, unpaid care and labour market participation

Gaps

  • the analysis focuses primarily on low-to-middle income households, so findings may not capture experiences across the full income distribution
  • further research is needed on long-term financial trajectories for households affected by disability and caring responsibilities
  • additional evidence would help clarify how policy reforms affect both carers’ financial wellbeing and care outcomes

Commentary
This report examines how disability and unpaid caring responsibilities shape financial circumstances for families across the UK. It shows that disability and caring are closely linked with lower household income, reduced employment opportunities and greater exposure to material deprivation, particularly among low-to-middle income households.

The findings highlight how caring responsibilities can affect participation in the labour market. Many carers report reducing their hours, changing jobs or leaving employment entirely because of the demands of providing care. At the same time, the structure of Carer’s Allowance – including earnings limits and strict eligibility rules – can create financial instability and discourage some carers from increasing their working hours.

From a social care equity perspective, the report illustrates how financial systems and welfare policies shape the distribution of care responsibilities and resources. When support for unpaid carers is limited, the financial consequences are often concentrated among households already facing economic disadvantage. Reductions in public spending on services that support carers, such as respite provision, can intensify these pressures and shift more responsibility onto families.

Overall, the analysis demonstrates that disability and unpaid care are central drivers of financial inequities within the UK. Addressing these challenges requires policy approaches that recognise the economic value of unpaid care while ensuring that carers and disabled people are not pushed into financial hardship as a result of the support they provide or require.

Austerity and mental health service provision in the UK

An analysis of how austerity-driven funding reductions have affected the capacity, accessibility and delivery of mental health services in the UK.

Key messages

  • austerity-related funding reductions have reduced the capacity of mental health services across the UK
  • access to mental health care has become more uneven, particularly affecting people in low-income or marginalised communities
  • higher thresholds for accessing services have left many individuals with unmet mental health needs
  • workforce pressures and reduced community provision have contributed to increased reliance on hospital-based and crisis services
  • financial constraints have weakened early intervention and preventative mental health programmes.

Policy implications

  • sustained investment in community-based mental health services is needed to reduce reliance on crisis care
  • early intervention and preventative programmes require stable funding to remain effective
  • workforce planning should address shortages created by funding reductions
  • policymakers may need to consider the long-term consequences of austerity policies on mental health outcomes.

Gaps

  • the study focuses on the period following austerity policies and does not examine longer-term trends beyond this context
  • limited quantitative evaluation of how funding reductions directly affect specific outcomes across different populations
  • further research is needed on how austerity impacts vary between regions and service types.

Commentary
This paper examines how austerity policies have reshaped the provision of mental health services in the UK. It shows that reductions in funding have constrained service capacity at a time when demand for mental health support has continued to rise. These pressures have resulted in stricter eligibility thresholds and greater reliance on crisis-based care.

The findings highlight how financial decisions affect the balance between preventative and reactive services. Cuts to early intervention and community support mean that individuals often receive help later, when needs have become more severe. This shift places additional pressure on hospital services and emergency care pathways.

Workforce shortages and reduced investment in community-based support further contribute to this pattern. When services are under-resourced, staff capacity declines and waiting times increase, reinforcing a system that responds to acute crises rather than preventing deterioration in mental health.

In relation to care equity, the study demonstrates how austerity measures can widen existing inequities in access to mental health support. Communities already experiencing socioeconomic disadvantage are more likely to face barriers to timely care, leading to greater reliance on emergency services and poorer long-term outcomes. These dynamics highlight how financial policy decisions can shape not only service availability but also the distribution of care across different populations.

Overall, the paper argues that sustained investment in mental health services, particularly in community-based and preventative approaches, is essential to avoid deepening inequities in access and outcomes.

Equity in social care funding for people with intellectual disabilities

A cross-sectional study examining whether social care funding for people with intellectual disabilities is distributed equitably across English local authorities.

Key statistics

  • more deprived local authorities support a higher number of people with intellectual disabilities per 100,000 population

Key messages

  • social care funding for people with intellectual disabilities is not distributed in line with need
  • higher levels of socioeconomic deprivation are associated with greater prevalence of support needs
  • funding allocation does not reflect this increased demand
  • rurality and political leadership were not associated with differences in funding levels.

Policy implications

  • funding formulas may need to better account for population need and deprivation
  • failure to align resources with demand risks widening regional inequalities
  • national oversight may be required to ensure local variation does not undermine equity
  • planning assumptions based on averages may disadvantage high-need areas.

Gaps

  • limited evidence on how funding inequities affect outcomes for people with intellectual disabilities
  • lack of analysis on the interaction between funding, service quality and unmet need
  • absence of longitudinal data to assess the cumulative impact of underfunding in deprived areas.

Commentary
This study identifies a clear equity issue in the distribution of social care funding for people with intellectual disabilities. Local authorities with higher levels of deprivation support more individuals with intellectual disabilities but do not receive or allocate proportionately greater resources. This mismatch between need and funding creates a structural disadvantage for people living in more deprived areas.

From a care equity perspective, this finding is particularly significant. When funding does not reflect population need, local authorities face constraints in service availability, workforce capacity and quality of provision. Over time, this risks entrenching place-based inequities, where access to adequate support depends on where a person lives rather than their level of need.

The absence of effects related to rurality or political leadership suggests that these inequities are systemic rather than incidental. This points towards national funding mechanisms that insufficiently weight deprivation and prevalence, rather than local decision-making alone. As a result, local authorities with the greatest challenges may be least able to respond effectively.

For people with intellectual disabilities, these structural funding gaps can translate into reduced access to personalised support, longer waiting times and greater pressure on families and unpaid carers. Without adjustment, funding arrangements risk reproducing inequality rather than mitigating it.

Addressing these inequities requires a shift towards needs-based resource allocation that explicitly recognises socioeconomic context. Ensuring equitable access to social care for people with intellectual disabilities depends not only on local practice, but on national systems that distribute resources in line with demand and complexity of need.

Free social care at the point of need

A policy analysis exploring the potential benefits and challenges of introducing a universal system of social care that is free at the point of need in England.

Key messages

  • introducing free social care at the point of need could remove financial barriers to accessing support
  • the current means-tested system can lead to financial hardship for individuals who must pay for care
  • a universal publicly funded system would require substantial government investment
  • international examples suggest universal social care systems can improve access and outcomes when adequately funded
  • reform would require balancing financial sustainability with equitable access to care.

Policy implications

  • policymakers may need to consider alternative funding mechanisms to support universal care provision
  • removing means testing could simplify access to services and reduce financial uncertainty for individuals
  • long-term investment would be required to ensure system sustainability
  • integration with health services could reduce pressures on hospitals and crisis care.

Gaps

  • the report focuses primarily on funding models rather than detailed implementation pathways
  • limited analysis of workforce implications under a universal care model
  • further research is needed on the long-term fiscal and social impacts of free social care.

Commentary
This report examines the policy case for making social care free at the point of need, drawing comparisons with the NHS model of universal access. It argues that the current means-tested system places significant financial responsibility on individuals and families, often requiring people to use personal savings or assets to pay for care.

The analysis suggests that removing financial barriers could improve access to care and reduce uncertainty for people seeking support. By shifting toward a universal model, the system could become simpler and more transparent, with fewer administrative hurdles related to financial assessments.

The report also considers the potential impact on wider public services. Earlier access to social care may reduce the likelihood of hospital admissions and delayed discharges by ensuring people receive support before needs escalate.

From a care inequities perspective, the report highlights how the existing means-tested system distributes financial risk unevenly. People with moderate assets may face significant care costs while others receive publicly funded support, creating uneven financial burdens across the population. A universal system could reduce these inequities by ensuring that access to care is based on need rather than financial means.

Overall, the report contributes to debates about how social care should be funded in England. While acknowledging the scale of investment required, it argues that universal provision could improve fairness in access to care and reduce financial inequities within the current system.

Funding pressures in social care for older people

A policy analysis examining the financial pressures facing local authority-funded social care for older people in England and the consequences for access, workforce stability and service sustainability.

Key messages

  • local authority spending on adult social care fell in real terms during a period of rising demand for services
  • access to publicly funded social care has narrowed as councils have tightened eligibility and reduced service provision
  • financial pressures have created instability in the social care provider market, increasing the risk of provider failure
  • workforce challenges, including recruitment and retention difficulties, are linked to low pay and funding constraints
  • reduced access to social care contributes to increased pressure on NHS services, including hospital admissions and delayed discharges
  • many older people experience unmet needs and rely more heavily on unpaid carers.

Policy implications

  • sustainable funding arrangements are needed to stabilise local authority social care budgets
  • policies should address workforce pay and retention to support service continuity
  • monitoring and support mechanisms may help reduce the risk of provider failure
  • improved coordination between health and social care systems could mitigate pressures caused by reduced social care provision.

Gaps

  • the report focuses primarily on financial pressures and service access rather than long-term system reform
  • limited analysis of how funding reductions affect different population groups beyond older people
  • further research is needed on the long-term sustainability of the social care provider market.

Commentary
This report examines how sustained reductions in local authority funding have reshaped the availability of social care for older people in England. It documents a widening gap between rising demand for care and the resources available to meet it, resulting in tighter eligibility thresholds and reduced service provision.

The analysis also highlights the interconnected nature of the health and care system. As access to social care becomes more limited, pressures shift to other services, particularly hospitals and community health teams. These dynamics demonstrate how financial decisions in one part of the system can generate costs and challenges elsewhere.

Financial pressures also affect workforce stability and the viability of care providers. Low pay and constrained funding limit providers’ ability to recruit and retain staff, while thin financial margins increase the risk of service closures or provider failure.

In terms of care equity, the report highlights how funding reductions can produce uneven access to support across different areas. Local authorities with greater financial constraints may restrict services more sharply, meaning older people in some communities face greater barriers to care than others. These patterns risk widening inequalities in who receives support, the quality of services available and the degree to which individuals must rely on informal care networks.

Overall, the report shows that financial sustainability is closely tied to fairness in access to care. Without stable funding for local authority social care, pressures on families, providers and the wider health system are likely to increase, reinforcing existing inequalities in support for older people.

Rising demand and financial eligibility for social care

An analysis of trends in social care demand and access in England, highlighting the relationship between increasing requests for support and financial eligibility thresholds.

Key statistics

  • new requests for social care support increased from 2.0 million in 2022/23 to 2.1 million in 2023/24
  • requests from working-age adults rose by 8%, increasing from 612,000 to 658,000
  • requests from older people increased by 3%, rising from 1.39 million to 1.43 million.

Key messages

  • demand for adult social care continues to increase across England
  • requests for support have risen for both working-age adults and older people
  • financial means-test thresholds have not been updated in line with inflation
  • static eligibility thresholds may restrict access to publicly funded care
  • rising demand combined with unchanged financial criteria may increase out-of-pocket costs for individuals.

Policy implications

  • regular review of means-test thresholds may be needed to reflect inflation and changes in living costs
  • funding models may need adjustment to accommodate increasing demand for support
  • policymakers may need to consider how financial eligibility criteria influence access to services
  • monitoring trends in requests for care can help inform resource allocation and planning.

Gaps

  • limited analysis of how financial thresholds affect different population groups
  • further research is needed to understand the relationship between eligibility rules, unmet need and access to services.

Commentary
The Social Care 360 analysis provides insight into trends in requests for adult social care support across England. The data show a continued rise in demand, with both working-age adults and older people seeking support in greater numbers.

While requests for support have increased, the report notes that the financial eligibility thresholds used in the means-testing system have not been updated to reflect inflation. As living costs rise, this can affect the number of people who qualify for publicly funded care.

The findings suggest that individuals whose financial circumstances fall just above the eligibility threshold may face increasing costs if they require care. For some households, this may lead to greater reliance on privately funded care or unpaid support from family members.

From a care equity perspective, the interaction between rising demand and static means-test thresholds may widen differences in access to care. Individuals with modest assets may not qualify for state support yet may struggle to afford private care, potentially leading to unmet needs. Adjusting financial eligibility rules to reflect economic conditions could help reduce these inequities and improve access to support based on need.

Overall, the report highlights the importance of aligning financial eligibility criteria with broader economic trends. Without periodic review, means-testing arrangements may become increasingly misaligned with the financial realities faced by people seeking social care.