The Road Ahead – Literature review
- Armstrong, D. and Davies, P. (1995) 'The transition from school to adulthood:
aspirations and careers advice for young adults with learning and adjustment
difficulties', British Journal of Special Education, 22 (2), pp.70-75.
- Barnardo's, (undated), My Voice, My Choice. Transition to Adulthood.
- Bent, A., Tennant, A., Swift, T., Posnett, J., Scuffham, P and Chamberlain,
M.A. (2002) 'Team approach versus ad hoc health services for young people
with physical disabilities: a retrospective cohort study', The Lancet, 360,Oct
26 2002 pp.1280-1286.
- Beyer, S., Goodere, L. & Kilsby, M. (1996) The Costs and Benefits of
Supported Employment Agencies, London: Department for Education and Employment.
- Bignall, T & Butt, J. (2000) Between Ambition and Achievement: Young
Black Disabled People's Views and Experiences of Independence and Independent
Living. Bristol: Policy Press.
- Bjarnason, D. (2002) 'New voices in Iceland: Parents and adult children:
juggling supports and choices in time and space', Disability and Society
, 17(3), pp.307-326.
- Blacher, J. (2001) 'Transition to adulthood: mental retardation, families
and culture', American Journal on Mental Retardation, 106(2), 173-188.
- Bond, H. (1999) 'Difficult transitions', Community Care, 29 th July - 4
th August 1999 pp.14-15.
- Cameron, L. and Murphy, J. (2002) 'Enabling young people with a learning
disability to make choices at a time of transition, British Journal of Learning
Disabilities, 30, 105-112.
- Carnaby, S., Lewis, P., Martin, D., Naylor, J.,
and Stewart, D. (2003) 'Participation in transition
review meetings: a case study of young people with
learning disabilities leaving a special school,
British Journal of Special Education, 30 (4), pp.187-193
- Carpenter, B. (2002) Count Us In: report of the inquiry into meeting the
mental health needs of young people with learning disabilities. London: Foundation
for People with Learning Disabilities.
- Choices Advocacy (undated) Transition. Young People
Said. Southampton: Choices Advocacy
- Clegg, J., Sheard, C., Cahill, J. and Osbeck,
L. (2001) 'Severe intellectual disability and transition
to adulthood', British Journal of Medical Psychology,
74 (part 2), pp.151-66.
- Collaborative Group for Learning Disability Research in the North West (undated) 'The
transition towards adult life for school leavers with moderate learning difficulties;
Research Digest, Issue no. 4.
- Cooney, B. (2002) 'Exploring perspectives on transition of youth with disabilities:
voices of young adults, parents and professionals', Mental Retardation ,
40(6), pp.425 -435.
- Cowen, A. (2001) Room to Move. A Book for Parents of Young People with Learning
Disabilities Leaving Home. Brighton: Pavilion Publishing/Joseph Rowntree
- Dee, L. and Byers, R. (2003) 'Facilitating transitions for people with profound
and complex learning difficulties', Journal of Integrated Care, 11 (3),
- Department of Health (2001) Valuing People: A New Strategy for Learning
Disability in the 21 st Century. London: Department of Health.
- Department of Health (2003) National Service Framework for Children. External
Working Group on Disabled Children: 'Work in Progress' Document. www.doh.gov.uk/nsf/children/externalwgdisabled.htm
- Edinburgh Youth Social Inclusion Partnership (2001) Learning by Doing Real
- Florian, L., Dee, L., Byers, R. and Maudslay, L. (2000) 'What happens after
the age of 14? Mapping transitions for pupils with profound and complex learning
difficulties', British Journal of Special Education, 27(3), pp.124-128.
- Florian, L., Maudslay, L., Dee, L. and Byers, R. (2000) 'What happens when
schooling ends? Further education opportunities for students with profound
and complex learning difficulties', The Skill Journal, 67, pp.16-23.
- Geenen, S., Powers, L. and Sells, W. (2003) 'Understanding the role of health
core providers during the transition of adolescents with disabilities and
special health care needs', Journal of Adolescent Health, 32, pp.225-233.
- Goupil, G., Tassé, M., Garcin, N. and Doré, C. (2002) 'Parent
and Teacher perceptions of individualised transition planning', British Journal
of Special Education, 29(3), pp127-135.
- Grove, B. and Giraud-Saunders, A. (2003) 'Connecting with Connexions - the
role of the personal adviser with young people with special educational and
support needs', Support for Learning, 18(1), pp.12-17.
- Hatton, C. (2002) 'Psychosocial interventions
for adults with intellectual disabilities and mental
health problems: a review', Journal of Mental Health,
11 (4), pp 357-373.
- Hendey, N. and Pascall, G. (2001) Disability and Transition to Adulthood:
Achieving Independent Living. Brighton: Pavilion.
- Heslop, P., Mallett, R. Simons, K. & Ward, L. (2002) Bridging the Divide
at Transition. What Happens for Young People with Learning Difficulties and
their Families? Kidderminster: British Institute of Learning Disabilities.
- Hudson, B. (2003), 'From adolescence to young
adulthood: the partnership challenge for learning
disability services in England', Disability and
Society, 18(3), pp.259-276.
- Hussain, Y., Atkin, K. and Ahmad, W. (2002) South Asian Disabled Young People
and Their Families. Bristol: The Policy Press.
- Jacobsen. Y (2003) 'Making the jump into employment', Adults Learning ,
February 2003, pp 25-27.
- King, N. (2000) Leaving Home, Moving On. London: Mental Health Foundation.
- Life Options (no date) The Life Options Information Service. Missing publication
- McAnespie, B., Kitteringham, J. & Corbett, J. (2000) 'Vocational education
and training to support the transition of young people with learning difficulties
to paid employment', Skill Journal Research Supplement, Issue No. 66, March
2000, pp. 1-7.
- McConkey, R. & Smyth, M. (2003) 'Parental perceptions of risks with
older teenagers who have severe learning difficulties contrasted with the
young people's views and experiences', Children and Society, 17, pp. 18-31.
- McNair, J. & Rusch, R. (1991) 'Parent involvement in transition programs',
Mental Retardation, 29 (2), pp. 93-101.
- Mitchell, W. (1999) 'Leaving special school: the next stop and future aspirations',
Disability and Society, 14 (6), pp. 753-769.
- Mitchell, W. & Sloper, P. (2000) User-friendly Information for Families
with Disabled Children. A Guide to Good Practice. York: York Publishing
Services/Joseph Rowntree Foundation.
- Morgan, H. (2003) 'Count us in: the inquiry into meeting the mental health
needs of young people with learning disabilities', Tizard Learning Disability
Review 8 (3), pp. 37-43.
- Morris, J. (1999) Hurtling into a Void. Transition to Adulthood for Young
Disabled People with 'Complex Health and Support Needs. Brighton: Pavilion/Joseph
- Morris, J. (2001) 'Social exclusion and young disabled people with high
levels of support needs', Critical Social Policy, 21 (2), pp. 161-183.
- Morris, J. (2002) 'Young disabled people moving
into adulthood', Foundations, York, Joseph Rowntree
Foundation, June 2002.
- Morrow, V. & Richards, M. (1996) Transitions to Adulthood. A Family
Matter? York: Joseph Rowntree Foundation.
- National Assembly for Wales (2004) National Service Framework for Children,
Young People and Maternity Services. External Working Group on Disabled
Children. Draft Standards. www.wales.nhs.uk/nsf
- O'Sullivan, T. (2001) Young Adults Transition Project: Draft Summary, London:
Optimum Health Services NHS Trust (now Community Health South London NHS
- Pearson, M., Flynn, M., Maugham, J. & Russell, P. (no date) Positive
Health in Transition. A Guide to Effective and Reflective Transition Planning
for young People with Learning Disabilities. Manchester: National Development
- Pennington, S. (2001) 'Two of a Kind', Guardian Society, Wednesday November
14 th 2001, pp. 5.
- Qualifications & Curriculum Authority (2003) 'Supporting leavers with
learning difficulties in moving from school to college', www.qca.org.uk/ca/inclusion/transition.asp
- Rabiee, P. (2000) 'Mind the Gap', www.communitycare.co.uk.
- Rowland-Crosby, N., Giraud-Saunders, A. & Donlon, P. (2002) Developing
Connexions. Young People with Disabilities, Mental Health Needs or Autism.
First Interim Report, October 2002. London: Institute for Applied Health
and Social Policy.
- Rowland-Crosby, N., Donlon, P. and Giraud-Saunders, A. (2003a) Developing
Connexions. Young people with Disabilities, Mental Health Needs or Autism.
Second Interim Report, May 2003. London: Institute for Applied Health & Social
- Rowland-Crosby, N., Giraud-Saunders, A. and Donlon, P. (2003b) Developing
Connexions. Young People with Disabilities, Mental Health Needs or Autism.
Third Interim Report, October 2003. London: The Foundation for People with
- Rosen, D. (1995) 'Between two worlds: bridging the cultures of child health
and adult medicine', Journal of Adolescent Health, 17, pp. 10-16.
- Russell, P. (2003) 'Planning positive transitions - the role of Connexions',
paper presented to the Foundation for People with Learning Disabilities'
e-conference Count Us In: Meeting the Mental Health Needs of Young People
with Learning Disabilities, July 2003.
- Sinson, V (1995) Care in the Community for Young People with Learning Disabilities - The
Client's Voice, London: Jessica Kingsley.
- Skill (2003) Aasha: Working with Young People with a Learning Difficulty
from a South Asian Background. London: Skill.
- Small, N., Pawson, N. & Raghavan, R. (2003) ''Choice Biography' and
the importance of the social', British Journal of Learning Disabilities ,
31, pp. 159-165.
- Smyth, M. & McConkey, R. (2003) 'Future aspirations of students with
severe learning disabilities and of their parents on leaving special schooling',
British Journal of Learning Disabilities, 31, pp. 54-59.
- Stewart, D. & Ray, C. (2001) 'Ensuring entitlement: Sex and relationships
education for disabled children', Forum Factsheet, Sex Education Forum.
London: National Children's Bureau.
- Thoma, C., Rogan, P., Baker, S. (2001) 'Student involvement in transition
planning: unheard voices', Education and Training in Mental Retardation and
Developmental Disabilities, 36 (10), pp16-29.
- Thorin, E., Yovanoff, P. & Irvin, L. (1996) 'Dilemmas forced by families
driving their young adults' transitions to adulthood: a brief report', Mental
Retardation, 34 (2), pp. 117-120.
- Thornton, P. (2002) 'Disability' (focus on transition issues), Research
2002 - April 2003.
- Tisdall, K. (1994) 'Why not consider citizenship?:
a critique of post-school transitional models for
young disabled people', Disability & Society,
9 (1), pp. 3-17.
- Valuing People Support Team (2003) Information Pack for Transition Champions
- Ward, L., Mallett, R., Heslop, P. & Simons, K. (2003a) 'Transition planning:
how well does it work for young people with learning disabilities and their
families?', British Journal of Special Education, 30 (3), pp. 132-137.
- Ward, L., Heslop, P., Mallett, R. & Simons, K. (2003b) 'Gap Years',
Community Care, February 20 th 1003, www.communitycare.co.uk.
- Ward, L., Mallett, R., Heslop, P. & Simons, K. (2003c) 'Planning for
health at transition', Learning Disability Practice, 6 (3), pp. 24-27.
- Ward, L., Heslop, Mallett, R. & Simons, K. (2003d) 'Transition: The
experiences of young people with learning disabilities and their families
in England', Tizard Learning Disability Review, 8 (4), pp. 19-28.
- Williams, V. (2003) 'Looking back at transition',
paper presented to the Foundation for People with
Learning Disabilities' e-conference Count Us In:
Meeting the Mental Health Needs of Young People
with Learning Disabilities, July 2003.
- Williams, V. (2004) Young People with Learning Disabilities and Emotional
Distress at Transition: How Can Connexions Help?. Internal research paper
available from Norah Fry Research Centre.
- Williams, V. and Heslop, P. (in press) ' Mental health support needs of
people with a learning disability: a medical or a social model?', submitted
to Disability and Society.
- Zetlin and Turner, 1985 quoted in Clegg et al, 2001.